Healthcare policies
Wales MND Manifesto 2021 - English
Our manifesto outlining 4 key areas that we believe political parties should commit to, to help improve the lives of people with MND, their families and carers in Wales. (2020)
Wales MND Manifesto 2021 - Welsh
Welsh translation of our manifesto outlining 4 key areas that we believe political parties should commit to, to help improve the lives of people with MND, their families and carers in Wales. (2020)
No Time to Waste
A report on Continuing Healthcare (CHC) in Wales for people with MND. (2019)
Welsh Public Health Outcomes Framework response
Our response to the consultation on a Public Health Outcomes Framework for Wales. (2016)
Specialised Services Commission
Our submission to the independent Commission on Specialised Services. (2016)
Models of Care in Motor Neurone Disease
A report by Myles Wilson from the OPM Group, exploring the different ways MND care is organised across the UK. (2016)
Response to NHS mandate consultation
Our response to the consultation on the NHS mandate. (2015)
Response to Spending Review and Autumn Statement - November 2015
Our response and how it will affect people living with MND. (2015)
Submission to the inquiry by the APPG on Dementia
Submission to the inquiry by the APPG on Dementia into dementia and comorbidities. (2015)
Comment on AAC service specification
Response to stakeholder consultation on revisions to the service specification for the specialised AAC in England. (2015)
Response to the NICE guideline on care of the dying adult
Statement on the consultation on draft guideline. (2015)
Specialised AAC services for people with MND: evidence of the current position
A report on specialised augmentative and alternative communication services. (2015)
Specialised AAC services for people with MND - appendix (2015)
Response to the NCPC review
Our response to a national review of choice at the end of life carried out by The National Council for Palliative Care on behalf of government. (2014)
Response to Wales CHC framework
Response to proposals to revise the framework for NHS Continuing Healthcare in Wales. (2014)
Response to Wales neurology delivery plan
Response to the draft delivery plan for neurology services in Wales. (2014)
Response to Wales respiratory delivery plan
Response to the draft delivery plan for respiratory services in Wales. (2014)
Submission to the Barker Commission
Our second submission to the Barker Review of the health and social care settlement. (2014)
Value Based Assessment response
Response to a consultation by NICE on the value-based assessment of new medicines. (2014)
King's Fund commission submission
Our first submission to the Barker Review of the health and social care settlement. (2013)
Liverpool Care Pathway review
Submission to the independent review of the Liverpool Care Pathway. (2013)
Response to proposed guidance on last days of life
Response to a consultation on proposed guidance for health and social care professionals caring for people at or near the end of life. (2013)
Submission to Labour independent commission on care
Submission to an independent review commissioned by the Labour Party. (2013)
Response To Specialised Commissioning Consultation
Our response to the consultation on draft service specifications for specialised commissioning in the NHS in England. (2013)
Specialised commissioning briefing
Paper describing the new NHS specialised commissioning arrangements in England. (2013)
Submission to the inquiry into NHS CHC by the APPG on Parkinson's
Submission to the inquiry by the All-Party Parliamentary Group on Parkinson’s into NHS Continuing Healthcare in England. (2013)
Consensus statement on Liverpool Care Pathway
Joint statement in support of the Liverpool Care Pathway, signed with 21 other organisations. (2012)
Shared decision-making response
Response to a consultation on shared decision-making in the NHS in England. (2012)
Response to the NHS White Paper
Response to the Coalition Government’s ‘Liberating the NHS’ White Paper. (2010)
Assisted dying policy statement
Our position statement on assisted dying.