New report sheds light on Continuing Healthcare in Wales

The MND Association has published a new report, No Time to Waste, which examines the experiences of people living with motor neurone disease in relation to NHS Continuing Healthcare (CHC) in Wales.

CHC is a vital part of NHS provision, which exists to ensure that people with the highest level of health-related care needs receive the support they require. People who are eligible for CHC receive social care services which are fully funded by the NHS.

Our report shows that when it works well, CHC funding can make a real difference to people living with MND, their carers and their families. CHC can provide high-quality social care and support to people with complex care needs, enabling them to maintain their independence, health and wellbeing for longer.

However, our report also reveals a range of concerning issues affecting the delivery of CHC for people with MND in Wales. Drawing on the views and experiences of individuals with MND, their family carers, volunteers and MND specialist professionals from across Wales, the report shows that CHC implementation on the ground too often falls short of the standards expected and required of it. The report makes a range of recommendations for improving CHC in Wales, aimed at both local and national decision-makers.

The report is available in both Welsh and English. To download a free copy of the report, please click here:

Welsh version

English version

The MND Association would like to thank the report’s author, Laura Courtney, and the health and social care workers, people with MND, carers and families who took part in the research.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262