At Christmas 2015 Sean relocated back home to the UK after more than a decade abroad. Within a year his mum was diagnosed with motor neurone disease and then his dad died suddenly.
He has been struggling since to make sure his mum gets the best care possible.
Linda sadly passed away in July, just a few weeks after we launched MND Costs. We continue to share her story with kind permission of Sean and his family.
Sean grew up in South London and his hard-working parents Bill and Linda worked long hours running transport cafés. He left home aged 19 and in 2004 moved to Australia with his future wife.
They stayed, his career as a project manager took off and the family grew. Sean’s parents visited to spend precious time with their three grandchildren.
But by December 2015 they had decided to call the UK home again and settled in Surrey. When Sean was away on business Linda was rushed to hospital – after waking up unable to speak. After many tests she was given a diagnosis of MND - which the retired couple struggled to come to terms with.
In February, just days after a family visit to his parent’s home in Norfolk (see picture), Sean’s dad Bill died suddenly. Sean said:
“The first thing mum wrote down when I saw her after my father passed was ‘can I come and live with you?’ and I said, ‘that’s a fantastic idea’ but little did we know how quickly things progress and that she would need full time care.
In April whilst Sean was visiting, Linda had a bad fall at home and she went into hospital.
“I don’t think she has come to terms with losing dad so suddenly on top of the diagnosis. Still today she writes down that she misses my father. He did everything for her, all the financials... everything.”