MND Guarantee

We need a major change in the way adaptations are provided in the home for people with MND. Too many are living in unsuitable and unsafe housing. We are asking local authorities to remove the red tape and fast track assessments for people with MND for these adaptations; as well as for the next government to consult on increasing the upper limit of a Disabled Facilities Grant.

The next parliament will be a critical period for MND research, with unprecedented levels of research activity to develop new disease-modifying and life-extending drugs for MND. Now is the time for sustained investment and support to bring these drugs to those who need them.

People with MND have been hit disproportionately hard by the cost of living crisis, especially regarding energy bills. We are asking the next government for targeted support to help people in the next parliament, and a sustainable, long-term solution to the energy crisis such as an energy social tariff. 

We need the next government to provide a sustainable social care funding settlement with a clear plan to address workforce shortages to ensure the sector can fully support people with MND. Long-delayed measures to stop people incurring catastrophic care costs must now be introduced.
 

Unpaid carers are the backbone of support for people with MND. The financial support they receive does not reflect the contribution they make and too many are excluded from support entirely. We are calling on the next government for a full review of the support currently available to unpaid carers.

Hustings are meetings where your candidates debate policies and answer your questions.

You could consider attending a hustings to encourage candidates to sign the MND Guarantee. Remember to take the handy canvasser card with you.

Your local council will usually be able to tell you when and where hustings will take place.

You can also organise meetings with your candidates to explain more about MND and encourage them to sign the MND Guarantee. 

Remember to use the canvasser card to help you.

To remain within impartiality guidelines, it is important to offer invitations to all candidates from major parties in your constituency. They do not have to accept the invitation. For more information on impartiality guidelines, please see below. 

If you would like help to organise a meeting with each of your candidates, please email us or call 0203 875 8910 and we’d be happy to assist you with this. 
 

Remember, if you’re representing the MND Association, you need to be balanced and impartial.

Read our guidance on charity campaigning and political activity here.

Election impartiality guidance for volunteers

If in doubt, contact us. 
 

If you have accessibility needs, you may like to consider applying for a postal vote.

If you’re voting in-person, polling stations should be wheelchair accessible and have an adapted level polling booth for wheelchair users.

Our tips for voting in-person: 

• Check the location of your polling station.
• Polling stations open at 7am and close at 10pm. 
• Ask polling station staff for help if you need it. 
• Remember you now need photo ID to vote. 

If you don't have a valid form of photo ID, you can apply for a 'Voter Authority Certificate' here.