Care Hands Block Full

Social care reform campaigning

Social care is a vital source of support for many people living with MND and their families.

However, the social care system is facing a crisis, with significant issues affecting access to essential care services. Some of the struggles the system faces include:

  • A lack of funding – the system has been chronically underfunded and additional funds have often been a sticking plaster to keep the system afloat rather than to put the system on a more sustainable footing
  • A workforce crisis – with high vacancy and turnover rates in the social care sector, poor pay and conditions, and a lack of recognition for social care staff
  • Lack of meaningful long-term reform – leaving many people facing catastrophic care costs and depending on a system that doesn’t always meet their needs.

These issues affect the availability and quality of care that people living with MND need. We therefore campaign for social care reform issues to deliver a sustainable system capable of meeting people’s needs effectively.

Our campaigning on social care in England

Information and support

If you want to find more practical information about social care and MND then the Association has information resources that may be able to help. If you need more direct information or support, then you can contact MND Connect by calling 0808 802 6262 or by emailing

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262