Christmas appeal 2022

MND means many families are facing a difficult Christmas

Will you help us show them they’re not alone?


Motor neurone disease is devastating for the whole family. Many people living with MND have children or young people at home. Being able to talk about their feelings and worries, with someone who is not a relation, can help them cope at such a traumatic time.

Our Children and Young People’s Service support them and their families, to deal with these difficult emotions and to feel less alone. One young person is Megan, now 22, who wanted to share her family’s story. In April 2020, her dad John was diagnosed with MND.

Megan and her family did everything possible to make Christmas special that year – they knew it might be their last one together. But there was no getting away from the reality of living with MND. When Megan’s dad became totally reliant on a feeding tube, she wanted to speak to someone who knew about MND. That’s when she got in touch.

“The MND support services helped me feel a lot less alone throughout my dad’s illness. They reassured me that there was nothing wrong with how I felt. Even when I called to say I woke up feeling angry because my friends still have their dads, and I was losing mine. They always understood and I’d always leave our calls feeling more at ease." Megan

Sadly, John died last year. But we’re still in touch with Megan and she knows we’re here for as long as she needs us.

We’ve promised to do everything we can to make sure no one faces MND alone. Can you help us to keep that promise this Christmas? By making a gift today, you’ll be helping to fund vital services for children, young people and families affected by MND.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262