MND: families are waiting too long to get their MND diagnosis confirmed

We can't change the past - but together, we will change the future. Vivienne

Will you make sure every doctor has the tools to spot the signs?

Vivienne's husband Tony was diagnosed with MND in 2013, almost two years after he first spotted the symptoms. He lost his fight in 2016, leaving Vivienne broken-hearted. If Tony and his family had known earlier, his daughters might have chosen to start a family sooner and Tony might have been able to meet his grandchildren.

We might not be able to cure MND yet. There’s no one single test, which means the diagnostic process will always take time. But, if GPs can spot the symptoms at the earliest opportunity, they can refer patients to neurologists quicker – so that the right diagnosis can be made as soon as possible.

Will you send a gift today, to help doctors spot the signs of MND?

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Red Flags: speeding up diagnosis

Spotting the symptoms of MND is one of the biggest challenges a GP could face. There’s no simple diagnostic test – and a doctor might only come across one patient in their entire career. We’ve developed the Red Flags tool. This simple resource, shown above, could help every doctor spot the key symptoms of MND and make the right referral at the right time.

Single Diagnostic Test June Appeal 2019

Identifying the patterns of MND symptoms

Researchers at the University of Oxford are beginning research into the symptoms of MND. By analysing 20 years’ worth of patient data to identify patterns of symptoms, we could help doctors diagnose faster and more accurately in the future. Their findings could help us create a diagnostic tool that’s integrated into existing NHS systems – so when a patient displays MND symptoms, GPs get an alert.

The race to find a single diagnostic test

  • What next?

    Researchers believe that, by identifying the unique biomarkers of MND, they could one day devise a simple test to accurately diagnose the disease.

  • Professor Martin Turner’s

    AMBRoSIA project is collecting cell samples from 1,300 people in the search for MND biomarkers.

  • Dr Majid Hafezparast

    is building on previous research to investigate how abnormal levels of several molecules in MND patients can help us diagnose quicker.

  • Dr Emily Feneberg

    is investigating the toxic accumulation of the TDP-43 protein that occurs in 97% of MND patients.

Please give today


could help get the Red Flags tool to more doctors – meaning they have the tools to spot the key symptoms of MND.

Give £20


could help train advisers for MND Connect – meaning doctors and patients can access the expert support they need.

Give £50


could help fund further research into MND symptoms – and identify the patterns of diagnosis.

Give £100
My husband had to wait in limbo for almost two years before he got diagnosed. No one should go through that. Vivienne Edwards

Please make a donation today and help change the way MND is diagnosed.


For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262