Yes, the trial is a big commitment – with 400-mile round trips, electrocardiograms, breathing tests, blood tests, urine tests, questionnaires, interviews, not to mention those lumbar punctures.
But I didn’t hesitate about joining. It has to be done – because it’s my family’s only hope.
Professor McDermott is targeting my faulty gene, SOD1, with a new drug. It stops the protein from damaging the neurons, which is what’s causing my type of MND.
Some people would be terrified at a big needle going directly into the spine, I know. But I don’t think about it.
I’m doing this for my family, to protect them from the horror of MND. I’m not going to just sit here and be miserable – I’ll do anything to beat this disease. Please join me today by making a donation.”
"MND has hit Dani’s family hard – so she’s doing her bit to protect them. She’s amazing. Seeing the sacrifices that she makes, I desperately want the trial to be a success."
Professor Chris McDermott, lead researcher on the SOD1 clinical trial