Join our virtual legacy reception – 6 Oct 22

Unfortunately we've had to cancel this event, but you are able to book onto our November event

Book your place


Date: Tuesday 8 November 2022
Location: Virtual
Time: 11am - 12.30pm

This legacy event aims to give supporters an update on the great work happening in care & research. Join us on Zoom to hear about the impact that gifts in Wills can have on people affected by MND.


Dr Nicol Birsa - University College London - Senior Non-Clinical Fellow
Dr Birsa's Non-Clinical Fellowship project focuses on the role of a specific protein in the development of MND, a protein called FUS, which becomes faulty in some people with the disease. Nicol aims to understand how the disruptions to protein production alter the function of nerve cells and their connection to muscles. Once it is understood how nerve cells are damaged, the project will move on to investigating if it is possible to correct the damage.

Dr Gareth Wright - University of Essex - Senior Non-Clinical Fellow
Dr Wright's project focuses on a protein called SOD1, this protein is found in all human cells but sometimes it misfolds into abnormal shapes that are toxic to motor neurones. Ultimately the project will help us to understand what causes those instances of MND where SOD1 misfolding is present and how it could be treated.

Dr Matthew Livesey - University of Sheffield - PhD Studentship
Studies show that MND doesn't just affect motor neurones but also other parts of the brain that control our ability to think, interact and formulate words. Dr Livesey's project will be looking at a completely new area of the brain that is often over-looked, the striatum, when damaged this may contribute to the cognitive impairments commonly seen in people with MND and related frontotemporal dementia (FTD).

Liz Stear - MND Key Worker - Wirral
Liz is a dedicated key worker who provides care and support to people living with MND on The Wirral. Liz will be talking about what her role involves and the difference she is able to make to the care of people living with MND in her local area, thanks to a generous legacy left to the MND Association.

Katherine Smith & Vicky Lester - MND Care Co-ordinators  - East Sussex
Katherine and Vicky provide vital support to people with MND in the East Sussex area thanks to a generous legacy left to the Association. They will be sharing what their role entails and how they have been able to make a difference by bridging the gap between the person with MND and them accessing the support they need.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262