Improving MND Care Survey 2019 now open

Person working with iPad

The Association has launched its Improving MND Care Survey which focuses on carers and people living with MND.

The survey asks questions around health, social and continuing care experiences. The information gathered will provide invaluable insight into the experiences of people living with MND and their carers and helps to shape our future priorities and activities.

Previous surveys have resulted in changes to Government policies, including the end of benefits re-assessments for those living with MND who receive the enhanced rates of daily living and mobility for PIP. In answer to survey responses, we have also produced an animation to help more people access information about voice banking and are currently revising our information about social care.

If you are living with MND or caring for someone living with MND, we would encourage you to complete the survey as it really can make a difference by influencing the work we do. The more complete a picture we get of MND care in England, Wales and Northern Ireland, the better for people with MND and their carers.

If you haven’t yet completed the survey, you can do so by clicking on the button below.

The survey has now closed.

To request a paper version or if you require a translated or large print version, please contact MND Connect on 0808 802 6262 or email

The last day for responses is 19 April.

We will share the findings of the survey later this year.


For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262