MND Research Campaign meets with Minister

The MND Association and coalition partners have received a commitment from Government officials to continue discussing the need for targeted MND research funding.

The commitment came during a meeting with Minister Helen Whately MP on the future of Government funding for MND research.

This was a ‘virtual round table’ meeting arranged by the United To End MND campaign coalition, which includes people living with MND, the MND Association, MND Scotland, the My Name’5 Doddie Foundation, and leading researchers.

The coalition took the opportunity to present proposals for increasing targeted funding for MND research at what is seen as a pivotal time. With a need to maintain research momentum, Government investment is the key to the ongoing urgent search for treatments and a cure for MND. Currently funding from charities outstrips that from Government. The coalition is asking for a £50 million cash injection over five years.

Helen Whately MP spoke about her recent meeting with people with MND in her constituency and how moved she’d been by their experiences.

Also in attendance at the round table were experts from the Department of Health and Social Care (DHSC) and the Department for Business, Energy and Industrial Strategy (BEIS), as well as leading research funding bodies the National Institute for Health Research (NIHR) and the Medical Research Council (MRC).

Speakers David Setters and Emma Moss, both living with MND, portrayed the physical and emotional impact of MND incredibly powerfully.

We also heard the UK’s most eminent MND scientists make a very strong case for increasing Government funding for MND research. Thanks to Professor Chris McDermott, Professor Ammar Al-Chalabi, Professor Dame Pam Shaw, Professor Kevin Talbot, Professor Nigel Leigh and Professor Siddharthan Chandran for their contributions.

Watch all the presentations and speeches from Helen Whately and the United to End MND alliance below.

What happens next?

During the meeting the officials committed to continuing the conversation with the coalition, having been left in no doubt of the need to address the issue.

We now look forward to working with Government to significantly increase funding for targeted MND research.

For more information on the United To End MND campaign please visit our webpage.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262