Exploring the needs of people caring for someone with MND in the first three months after diagnosis
This study will investigate the support needed by people who care for someone with Motor Neuron Disease (MND) in the first three months after the diagnosis of their care recipient. This early period, known as the ‘post-diagnostic period’, can represent a time of rapid adjustment, role change and grief for carers, who commonly have no prior experience of caregiving. The researchers will interview people who currently or have previously cared for someone living with MND, to learn about their experiences.
How will this study help people with and affected by MND now and/or in the future?
This interview study will help to understand the support needs of informal carers of people with MND within the three-month period post-diagnosis, with the hope of improving the support received by carers in the future.
Taking Part
What does taking part involve?
People who take part will be asked to participate in an online interview, lasting approximately 1 hour.
Who can take part?
Current or bereaved informal (unpaid) carers of people with MND.
How can I take part?
If you would like to take part in the interview study, please complete the ‘Expression of Interest form’, or for more information, please contact Rosie Bamber, rbamber@sheffield.ac.uk
Study location
UK-wide
Funding
This research is funded by the National Institute for Health and Care Research and NIHR Sheffield Biomedical Research Centre