Support grants
Diana
November 2025
Diana, a former education administrator, shares her journey with MND. Initially, Diana was told her symptoms were down to stress. She later received a formal diagnosis of MND.
Working with MND
Lorraine
October 2025
Lorraine was diagnosed with MND in May 2024. She discusses the support she receives from her employer and family and emphasises the importance of living life fully, and planning for end-of-life care.
Communication aids
Tahira and Amna
October 2025
Tahira was diagnosed with MND in 2020 after having symptoms for 18 months. She emphasises the importance of focusing on the person rather than the illness and Amna reflects on her mother's strength.
Living with MND
Eugene
October 2025
Eugene lives in Chelmsford with his wife Nicola and their two children. Before his MND diagnosis, Eugene had a very active life, and the family spent five years living in Hong Kong for Eugene’s work.
Support grants
Alex
October 2025
Alex was diagnosed with MND in 2021 at the age of 30. Alex and his husband Craig made the decision to embrace life and make as many special memories as possible.
Volunteering
Tracy
October 2025
Tracy shares her journey from losing her husband, David, to MND in 2016 to becoming an Association Visitor, Branch Chair for the West Yorkshire Branch and clinic volunteer.
Advocacy
Debbie
October 2025
Debbie was diagnosed with MND in 2022 at just 55. Following her diagnosis, she was determined to share her story online and support other women with MND.
PLS
Zoe
October 2025
Zoe lives in London and was diagnosed with MND in 2022 after noticing early symptoms when recovering from a serious back operation. Zoe is passionate about raising awareness.
Legacy Stories
Nickie
October 2025
We interviewed Nickie at the stables - her happy place - to find out what life with MND is like and how she keeps positive during the daily challenges MND presents.
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