Welcome to the Association's story hub - a collection of personal stories and experiences from the MND community. 

Zoe on top of a mountain in Morocco
PLS

Zoe

October 2025
Zoe lives in London and was diagnosed with MND in 2022 after noticing early symptoms when recovering from a serious back operation. Zoe is passionate about raising awareness.
Nickie with her hose at the stables
Legacy Stories

Nickie

October 2025
We interviewed Nickie at the stables - her happy place - to find out what life with MND is like and how she keeps positive during the daily challenges MND presents.
Patrick sitting outside - autumnal trees in the background
Support grants

Patrick

October 2025
Patrick was diagnosed with PLS in December 2023 after experiencing symptoms in April 2022. Life with MND looks different now, but he still maintains his passion for music.