For acute, urgent and emergency care staff

Motor neurone disease (MND) is a progressive and terminal disease that attacks the motor neurones, or nerves, in the brain and spinal cord.

As most people with MND are cared for at home, if an acute incident occurs, they will need to access crisis intervention services.

Our guide for professionals in acute, urgent and emergency care is designed to give succinct guidance on actions to take and things to consider when treating someone with the condition. It is endorsed by the Royal College of Emergency Medicine.

You can order hard copies of this booklet from MND Connect.
Read below for an extract, and download a copy of the resource.

We have supported the Royal College of Paramedics in the production of a resource designed to help paramedics with what can be a challenging presentation for emergency services. See tab on the right, or contact Jennifer Bedford, Head of Partnerships at the MND Association, for more information.

Key points when you have a patient with MND

Check for the following documents in the person’s records:

  • Emergency healthcare plan
  • Advance care plan – this includes preferences for care, including place of care and end of life decisions
  • Advance Decision to Refuse Treatment (ADRT) – if the person has created and signed an ADRT, this must be considered
  • Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) – the person may have specified a DNACPR, which must be considered
  • MND Alert Card or Understanding My Needs – these include key contacts and information about their care team and the specialist help they may need.

Key points when you have a patient with MND

Find out more

You can read more and find references for the above information in our guide:

Contact our helpline MND Connect if you have any further questions about MND.

We have a range of information resources on topics related to MND, for people with and affected by MND and for health and social care professionals.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262