Skip to content
MND Connect Helpline
0808 802 6262
Donate
mndconnect@mndassociation.org
Shop with us
All
Posts
Pages
Media
Events
Videos
Research policies
Care information sheets
MND Association
Donate
Menu
About MND
What is MND?
What is Kennedy’s disease?
Newly diagnosed?
Coronavirus and MND
Early signs of MND
How is MND diagnosed?
What causes MND?
Inherited MND
What is MND?
Basic facts about Kennedy’s disease
Further support for Kennedy’s disease
What is Kennedy's disease?
Coronavirus information
Support and information
Our services
Local support
Living with MND
Health and social care
Carers and family
Children and young people
Information resources
Coronavirus and MND
MND Matters: the MND Association podcast
MND Connect Helpline
Benefits advice service for motor neurone disease
Equipment loan for MND
Financial support grants
Free Will writing services
Communication aids service
Care centres and networks
Online Forum
Find support in your area
Branches and groups
Area Support Co-ordinators
Association visitors (AVs)
Care centres and networks
Regional events
Mobility and movement
Personal care
Speech and communication
Swallowing, eating and drinking
Relationships and family
Emotions, thinking and behaviour
Breathing and ventilation
Types of care and who provides them
Needs assessment, home care and home adaptations
Benefits, financial support and cost of living
Treatments and medication
Getting the right treatment or care with MND
Planning ahead
Support for carers
Support for family members
Bereavement support
Parents and guardians
Children aged 4 to 10
Young people aged 11 to 18
Information for people with or affected by MND
Information in other languages and formats
Professional information
Research information sheets
Useful organisations and internet sites
Free or low cost apps
Coronavirus information
Get involved
Fundraise
Volunteer with us
Campaign
Cure Finders
Donate
Become a Member
Fundraise your way
Fundraising Events
Find a fundraising event
Give in memory
Fightback Funds
Leave a gift in your Will
Corporate Partnerships
Trusts and Foundations
Fundraising Feedback and complaints
Make a gift aid declaration
Pay in your fundraising money
Raffle
Become a volunteer
Existing volunteers
Event volunteering
Current campaigns
Campaign with us
Past campaigns
Policy
All-Party Parliamentary Group (APPG) on MND
Campaigning Toolkit
Make a donation
Make a regular donation
Change your regular donation
Payroll Giving
Have you seen our latest appeal?
Research
Our research
For researchers
Get involved in research
Research News
Clinical Trials
MND Register
International Symposium
Research we fund
Our researchers
Our research strategy
Using animals and stem cells in our research
UK MND Collections samples
Resources for researchers
Noticeboard
The Researcher Newsletter
Apply for funding
Take part in research
MND Register
MND Research List
MND Register
Latest Research News
MND Research Blog
MND Research Newsletter
Research information sheets
What are clinical trials?
Treatment trials
Unproven treatments
MIROCALS
Professionals
Management of MND
Education and development
Community of practice
Publications and Resources
Support for professionals
Transforming MND Care Audit Tool
Sign up for our Education newsletter
Information for specific professions
Diagnosis of MND
Dysphagia, nutrition and saliva problems
Respiratory symptoms in MND
Dysarthria
Muscle weakness and pain
Cognitive change and frontotemporal dementia
Palliative and end of life care
Calendar of events
Webinars
Online Courses
Annual Stephen Hawking MND Lecture
Publications for professionals
Understanding MND training films
Information for people with or affected by MND
Information for carers and families
MND Just in Case kit
Best practice guidelines and pathways
How we support professionals
Our services
Equipment loan service
Financial support grants
Communication aids service
MND Connect Helpline
Area Support Co-ordinators
General information
NICE Guideline on MND
MND Care Audit Tool
About MND
What is MND?
Early signs of MND
How is MND diagnosed?
What causes MND?
Inherited MND
What is Kennedy’s disease?
Basic facts about Kennedy’s disease
Further support for Kennedy’s disease
Newly diagnosed?
Coronavirus and MND
Coronavirus information
Support and information
Our services
MND Connect Helpline
Benefits advice service for motor neurone disease
Equipment loan for MND
Financial support grants
Free Will writing services
Communication aids service
Care centres and networks
Online Forum
Local support
Find support in your area
Branches and groups
Area Support Co-ordinators
Association visitors (AVs)
Care centres and networks
Regional events
Living with MND
Mobility and movement
Personal care
Speech and communication
Swallowing, eating and drinking
Relationships and family
Emotions, thinking and behaviour
Breathing and ventilation
Health and social care
Types of care and who provides them
Needs assessment, home care and home adaptations
Benefits, financial support and cost of living
Treatments and medication
Getting the right treatment or care with MND
Planning ahead
Carers and family
Support for carers
Support for family members
Bereavement support
Children and young people
Parents and guardians
Children aged 4 to 10
Young people aged 11 to 18
Information resources
Information for people with or affected by MND
Information in other languages and formats
Professional information
Research information sheets
Useful organisations and internet sites
Free or low cost apps
Coronavirus and MND
Coronavirus information
MND Matters: the MND Association podcast
Get involved
Fundraise
Fundraise your way
Fundraising Events
Find a fundraising event
Give in memory
Fightback Funds
Leave a gift in your Will
Corporate Partnerships
Trusts and Foundations
Fundraising Feedback and complaints
Make a gift aid declaration
Pay in your fundraising money
Raffle
Volunteer with us
Become a volunteer
Existing volunteers
Event volunteering
Campaign
Current campaigns
Campaign with us
Past campaigns
Policy
All-Party Parliamentary Group (APPG) on MND
Campaigning Toolkit
Cure Finders
Donate
Make a donation
Make a regular donation
Change your regular donation
Payroll Giving
Have you seen our latest appeal?
Become a Member
Research
Our research
Research we fund
Our researchers
Our research strategy
Using animals and stem cells in our research
UK MND Collections samples
For researchers
Resources for researchers
Noticeboard
The Researcher Newsletter
Apply for funding
Get involved in research
Take part in research
MND Register
MND Research List
Research News
Latest Research News
MND Research Blog
MND Research Newsletter
Research information sheets
Clinical Trials
What are clinical trials?
Treatment trials
Unproven treatments
MIROCALS
MND Register
International Symposium
Professionals
Management of MND
Information for specific professions
Diagnosis of MND
Dysphagia, nutrition and saliva problems
Respiratory symptoms in MND
Dysarthria
Muscle weakness and pain
Cognitive change and frontotemporal dementia
Palliative and end of life care
Education and development
Calendar of events
Webinars
Online Courses
Annual Stephen Hawking MND Lecture
Community of practice
Publications and Resources
Publications for professionals
Understanding MND training films
Information for people with or affected by MND
Information for carers and families
MND Just in Case kit
Best practice guidelines and pathways
Support for professionals
How we support professionals
Our services
Equipment loan service
Financial support grants
Communication aids service
MND Connect Helpline
Area Support Co-ordinators
Transforming MND Care Audit Tool
General information
NICE Guideline on MND
Sign up for our Education newsletter
Home
Research
Get involved in research
MND Register
Sign up for the MND Register newsletter
Sign up for the MND Register newsletter
If you’d like to receive quarterly updates on the progress of the MND Register, key milestones achieved and updates on the research then sign up to the e-newsletter below.
The e-newsletter is created and distributed by the MND Association and will be sent to the email you provide. Your details will also be shared with the team at the MND Register but please be aware that this will not mean you have been signed up for the MND Register.
Name
*
First
Last
Email
*
Enter Email
Confirm Email
The newsletter will be sent from the MND Association on behalf of the MND Register. The information you provided above will be stored in our secure database and will not be shared with third parties or external organisations. You can stop receiving emails at any time by clicking ‘unsubscribe‘ in any of our email communications. For full information on how we use your information see our
privacy policy
.
Your connection to MND
Please select
I am living with MND
I have a partner living with MND
I am a carer for someone living with MND
I have a relative living with MND
I have a friend living with MND
I lost a family member to MND
I lost a friend to MND
I have a professional connection to MND
I would rather not say
None, I simply wish to support your cause
Research
MND EnCouRage UK 2023
MND EnCouRage UK – Researchers
MND EnCouRage UK – MND Community
Latest Research News
Research FAQs
Research News
Useful websites
Research information sheets
Useful resources
Research talks
Our research
Research we fund
Research we fund – Developing treatment pipeline
Development of an SRSF1-targeted gene therapy for C9orf72 MND/FTD
Development of RAR class ligands for treatment of Motor Neuron Disease
PRELUDE Clinical Trial
Developing strategies to promote muscle reinnervation in MND
Research we fund – Identifying Therapeutic Targets
Functionally characterising changes in ‘non-coding’ regions of DNA
Investigating early protein translation deficits in mouse/iPSC models
Investigating the role of NEK1 in MND
Molecular mechanisms of disease onset in TDP-43 proteinopathies
The impact of TDP-43 on translation and the response to axonal damage in Amyotrophic Lateral Sclerosis
Understanding RNA dysfunction using novel RNA-seq technologies
Understanding the role of NEAT1 in MND
Glial engulfment of human synapses in MND
Role of axonal transport in cell models carrying MND mutations
Natural and synthetic chaperones for SOD1-related MND
Capturing cell-type specific miRNA deregulation in MND using human stem cell models
MND’s next top model: evaluating iPSC models by protein aggregates
Targeting ALS-dysregulated microRNAs in astrocytes
The role of ALS-associated RNA binding proteins in axonal reinnervation and ALS pathogenesis
Role of immune-related autophagy and inflammation in C9MND/FTD
Identifying the early biochemical signature of MND
Developing AAV-GRN gene therapy for Motor Neuron Disease
Investigating ALS as a disease of the Tripartite Synapse
TDP-43 and p62 in MND-FTD: when a molecular handshake goes wrong
Longitudinal multi-omics of host-microbe dynamics in Amyotrophic Lateral Sclerosis
Research we fund – Understanding clinical progression
Developing Motor Unit MRI as a diagnostic tool for motor neuron diseases
NECTAR – Screening component of AMBRoSIA
Neuroimaging and neurochemical biomarkers of brain ageing in MND
Development of ALS prognostic biomarkers based on patterned neural network dysfunction
Research we fund – Improving standards of care
Developing a web-based decision aid for gastrostomy in MND (Diamond Study)
Evaluation of post-gastrostomy management in MND (Post Gas)
A prospective observation of secretion problems in MND (ProSec)
Developing a patient decision aid to support genetic testing in MND
Practical management of cognitive symptoms in MND (MiND Toolkit)
Understanding living with tracheostomy ventilation for MND
Our researchers
Our Fellows
Our research strategy
Our achievements
UK MND Collections samples
Using animals and stem cells in our research
Stem cells and MND
Stem cell therapy
Using stem cells in research
Animal research
Involving animals in research
Reducing animals used in research
How are the animals cared for?
Our Position Statement on animal research
Helping develop better treatments
Clinical Trials
MIROCALS
What are clinical trials?
Unproven treatments
Treatment trials
Tauroursodeoxycholic acid
Tauroursodeoxycholic acid
SAR443820
ION363/Jacifusen
QRL-201
Dazucorilant
Clinical Trials Glossary
AMX0035
Interleukin-2
BIIB067 (Tofersen)
Trimetazidine (MetFlex)
CuATSM
Tegoprubart (AT-1501)
CNM-Au8
Edaravone/Radicut/Radicava
Ibudilast/MN-166
MND SMART
Oral Edaravone
ILB
Masitinib
Metformin
Reldesemtiv/Tirasemtiv
RT001
Triumeq
HEALEY ALS Platform Trial
WVE-004
Arimoclomol
MAGNET Platform Trial
Levosimendan (ODM-109)
Memantine
NP001
Pegcetacoplan/APL-2
NurOwn
Nuedexta
Ravulizumad/Ultomiris
Get involved in research
Take part in research
TVLife: Understanding Living with Tracheostomy Ventilation for MND
Developing a stimulation-free remote motor unit number estimate (REMUNE) in MND
Experiences of emotional distress in people with MND
MND Neck Collar Survey
ALS biomarker study
C9orf72 cohort study
MND Register of England, Wales and Northern Ireland
VentMND: exploring end of life decisions around use of ventilation
A study of biomarkers of cognition and behaviour using physiological and digital Technologies: the living lab protocol
A study into perceptions and experiences of multilingual people with MND on their use of Augmentative and Alternative Communication
AMBRoSIA: A Multicentre Biomarker Resource Strategy in ALS
TONiC: quality of life in neurological conditions
Pilot observational cohort study to determine whether waveform and flow traces from mechanical insufflation:exsufflation (MI:E) can be used to identify laryngeal responses to MI:E and thus optimise treatment algorithms in Neuromuscular patients
Exploration of lived experiences of death and dying conversations: A phenomenological study
Neuro Digital: From Attitudes to Strategies
Pressure ulcer prevention at home
Neuro Digital Profiles Survey
Neuro Digital: Outpatient Perspectives
MIND MAPS ALS
MND-SMART
The COVID-19 Pandemic: The lived experience of people with Motor Neurone Disease
Exploring the acceptance of an early screening tool for neurodegenerative disease that uses 3D retinal imaging and AI
OptiCALS
Online peer-to-peer support programme for carers of MND
The organisation and delivery of decision support to people with MND making the decision to have a gastrostomy placed
Psychological Aspects and Implications of Predictive Genetic Testing for MND
MIROCALS Consortium Meeting
MIROCALS Consortium Meeting Registration
MND research newsletter
Thank you for subscribing
MND Register
Sign up for the MND Register newsletter
Join the MND Research List
For researchers
Apply for funding
Biomedical Research Advisory Panel
Healthcare Research Advisory Panel
MND Pre-Fellowship Scheme
Resources for researchers
Introduction to the UK MND Collections
Impact and networking
DNA Bank
Cell lines
Epidemiology Data
Current research projects using the UK MND Collections
Researchfish
Europe PMC – Open Access
Help with recruitment
Noticeboard
The Researcher newsletter
Show menu
For further information and support contact our
MND Connect helpline
mndconnect
0808 802 6262
Email us
Online Forum