Investigating the experiences of family carers
Family carers play a vital role in caring for a person living with MND. However, previous research has shown that their expert understanding of the needs of people living with MND is not always acknowledged, and their own needs are not often considered. Care pathways differ across the UK, and have differing outcomes for family carers.
The researchers have developed a survey alongside current and former family carers, to investigate and better understand people’s experience of providing care to a family member or close friend with MND, and the support they received. They have also developed a survey for people living with MND to understand their thoughts about the support their family carer receives.
Taking Part
What does taking part involve?
You will be asked to complete a short online survey about your experiences.
Who can take part?
- Family carers of people living with MND
- People living with MND
How can I take part?
To take part, visit the online survey for family carers or the online survey for people living with MND. For more information, or if you would rather complete the survey by telephone, call Emma Regan on 0116 252 5438 or email the team, at [email protected]
Study location
UK-wide
Funding
This study is funded by the National Institute of Health and Care Research (NIHR)