Rugby legend pledges support for families living with motor neurone disease

Doddie Weir with directors Dr Brian Dickie and Chris James

The Foundation set up by former Scotland rugby player Doddie Weir has given a £100,000 cash boost to the Motor Neurone Disease Association to improve the lives of those affected by the terminal illness.

A year on from the announcement of his motor neurone disease (MND) diagnosis, the former British and Irish Lion, and Scottish international, is using funds raised through the My Name’5 Doddie Foundation to work with the Association and support people with MND across England, Wales and Northern Ireland. The £100,000 donation follows a one-off donation for the same amount to MND Scotland.

The money will be used by the charity to help people living with MND adapt their homes and also to fund respite activities for carers – supporting a much-needed pamper day or short break for instance.

Doddie said:

“We are delighted to be investing £100,000 to help families affected by MND across England. Wales and Northern Ireland. This follows our commitment to MND Scotland and reflects the level of support we have received across the whole of the UK since we launched the Foundation last November.

“To be told you have motor neurone disease is devastating news. It has a profound effect on the whole family and, from the start, I wanted to do something to help people who were going through the same as me. We are committed to helping find a cure for this devastating disease but also helping people whose lives have been affected by MND.

“We have already been able to help people through some individual grants, but we also know that charities such as MND Association and MND Scotland have the necessary experience and resources to administer and manage this process making sure we help the people who need it most.

“We have had incredible support and through the generosity of people from all quarters we will be continuing our efforts to raise awareness, help find a cure for MND and do all we can to help people with this terrible disease.”

The MND Association’s Care Grants programme totals more than £1 million annually. In 2017, the Association awarded almost 1,800 grants to people with MND, carers and young people affected by the disease.

MND Association’s chief executive Sally Light said:

“We are extremely grateful to the My Name’5 Doddie Foundation for this very generous contribution to our grants programme. For some people living with MND these grants are essential, whether it’s to allow them to make the adaptations necessary for them to continue to live as independently as possible or for carers to be given a chance to recharge their batteries and make their vital role a little easier.”

For more information about MND, the Association and the grants available visit

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262