Parents and guardians

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If you are living with or affected by motor neurone disease (MND), there may be children or young people in your family.

They may need help to understand the changes happening around them, but it can feel difficult to start these conversations. We offer information and support to help - see the options below.

"We're unsure what to say or do." MND carer and parent

  • Page last updated: 24 January 2023
  • Next review: January 2025

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262