Do you provide unpaid care for a loved one living with MND? We'd love to hear from you.
Thank you for sharing your experiences of caring with us. Between November and December 2021, we engaged with 255 people who care for a loved one living with MND.
We want to take this opportunity to thank each and every one of you for taking part and sharing what matters to you.
In total:
- 218 carers shared their views via our online survey
- 21 carers took part in our virtual focus groups
- 5 one-to-one interviews with carers were held
- 11 volunteers who support carers shared their perspectives
We have gained some rich insights and increased our understanding into the needs and experiences of carers. We will use this information to help shape the support we provide to carers, and to shape our future campaigning work.
We are now analysing the responses we have received and will produce a report in early 2022.
If you have any questions relating to this project you can still contact us by emailing carersproject@mndassociation.org
If you're a current carer for a person living with MND, and you want to share your story, we'd love to hear from you. The MND Association uses personal stories to raise awareness of motor neurone disease and the way it impacts families affected by the condition. We may use your story in the media, on our social media channels, or in our fundraising work. If you are interested in sharing your story with us, contact carersproject@mndassociation.org with the subject line 'My story.'
Or if you need direct information and support relating to your caring role then you can contact our MND Connect helpline by calling 0808 802 6262 or emailing mndconnect@mndassociation.org
