Benefits, financial support and cost of living

A person reading our information on benefits

If you have MND, Kennedy's disease or provide support as a carer, you may be facing unexpected costs. You may qualify for a range of benefits or other types of financial support. This may be of great help, especially with the rise in cost of living.

If you have not claimed benefits before, this can feel daunting. However, it is your right to do so and may make a significant difference to your financial position and peace of mind. If employed, you may also be thinking about options at work. Select from the following to find out more and for links about how to save on cost of living.

“I was in work when diagnosed and found it difficult to know what benefits I was entitled to.” Person with MND


The video below is by the Department for Work and Pensions (DWP), who are responsible for benefits for people in England and Wales. The video explains Personal Independence Payment, one of the main disability benefits in the UK. You can find more videos on PIP by the DWP on their YouTube channel.

The video below is by the Department for Work and Pensions (DWP). The video explains Support for Mortgage Interest (SMI), a loan from the DWP to help towards interest payments on a mortgage or loan for certain repairs or home improvements. SMI is not mentioned in the drop downs above, but we do provide more detail in Information sheet 10A - Benefits and entitlements.

  • Page last updated: 6 December 2022
  • Next review: 30 June 2024

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262