End of life: a guide for people with motor neurone disease
If you have MND, you may have concerns about the later stages of the disease and what will happen with your future care. Our publication End of life: a guide for people with motor neurone disease has been developed to help you with end of life decisions, so that your wishes and preferences are known and respected. This comprehensive and candid guide provides guidance on how to plan ahead and communicate your choices to family and professionals.
This guide was announced Patient Information of the Year 2015, by the British Medical Association at the BMA Awards, and is regularly updated with the help of our readers, and health and social care experts.
The following options enable you to download either the full version of the guide or extracted sections. Click on the image or heading to download the item you want.
You can also order the guide in printed format from our helpline, MND Connect.
Section 3: Difficult conversations with professionals
This section is extracted from the End of life guide. It explores how to manage difficult conversations about end of life with your health and social care team.
Section 11: Inherited MND and genetic counselling
This section provides guidance on how to explore whether you have a family history of MND and what to do should you wish to leave a genetic history for your current and future blood relatives.