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MND - an overview

Basic facts about MND and what to think about when newly diagnosed
A leaflet with basic facts about MND and how to find out more from the MND Association.
Our short animation about the disease, along with other introductory animations. Includes voice over and subtitles.
How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.
An overview of the range of care available with MND or Kennedy's disease.
A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.
Our podcast series, giving people with or affected by MND or Kennedy's disease the chance to share their stories.

Research hub

Web page
Information about the research we fund, clinical trials, news and how to get involved.

Kennedy's disease - an overview

An overview of the range of care available with MND or Kennedy's disease.
A list of all our care information for MND. Many of these resources are inclusive of Kennedy's disease as the two diseases share similar symptoms and physical difficulties.
A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Mobility, movement, pain and twitching

Our booklet about driving, transport, travel and holidays if you need support with MND or Kennedy's disease.
Guidance on how physiotherapy can help if you have problems with mobility, movement or stiff muscles, and how you can access this support.
How to find support if you experience pain - particularly due to problems with movement or mobility.
Guidance about environmental controls and how they can help with remote control of facilities in your home.
This information sheet looks at ways to make daily life easier by using a range of equipment, including wheelchairs, and how to access this support.

Speech and communication

How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.
Guidance about which communications aids to use, whether to try voice banking and to access some items on loan.
This interactive form helps you record your care needs to help guide hospital staff or care workers.

Swallowing, eating and drinking

Information to help manage concerns about swallowing difficulties, saliva, coughing and choking with MND.
Guidance to help with decision-making about tube feeding, if you have problems with swallowing, eating or drinking.
Researchers at Southampton University developed this web-based patient decision aid for people with MND, who are considering tube feeding with a gastrostomy tube.

myTube website

Web page
myTube explores tube feeding through user videos and information (developed by SITraN – the Sheffield Institute for Translational Neuroscience).

Emotions, thinking and behaviour

Guidance on emotional and psychological support. This web page also includes information on changes to thinking and behaviour which can affect some people with MND.
How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.
Our information sheet about these additional therapies that some people find helpful to ease symptoms or feelings of stress.

Breathing problems

Videos about assisted ventilation from people with or affected by MND, part-funded by the MND Association and developed by SITraN, the Sheffield Institute for Translational Neuroscience.

Treatments and medication

An overview of the range of care available with MND or Kennedy's disease.
This interactive form helps you record your care needs to help guide hospital staff or care workers.
Our information sheet about the recommendations from NICE for professionals on the treatment, care and support for people living with MND and their carers.
Our information sheet about the benefits of an early referral to a hospice or palliative team when living with MND.
Our information sheet about riluzole, the only drug to be licensed in the UK to help prolong survival with MND by several months.
Guidance on how physiotherapy can help if you have problems with mobility, movement or stiff muscles, and how you can access this support.
Our information sheet about these additional therapies that some people find helpful to ease symptoms or feelings of stress.
How to find support if you experience pain - particularly due to problems with movement or mobility.
Our information sheet about how to access this fully funded health and social care, if your primary healthcare needs have become urgent and complex.
Our information sheet about personal health budgets, available in England to help give you more control over the healthcare services you receive.

Research hub

Web page
Information about the research we fund, clinical trials, news and how to get involved.
A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Personal care

Guidance about how to prolong independence with daily routines and intimate personal care, and how to get support when needed.
Our short animation about social care, along with other introductory animations. Includes voice over and subtitles.
Our information sheet on social care, including getting your needs assessed, who pays for any agreed care services and how to use direct payments for choice and control over services.
This interactive form helps you record your care needs to help guide hospital staff or care workers.
Our information sheet about how to access this fully funded health and social care, if your primary healthcare needs have become urgent and complex.
Guidance about environmental controls and how they can help with remote control of facilities in your home.
This information sheet looks at ways to make daily life easier by using a range of equipment, including wheelchairs, and how to access this support.

Social care and financial support

Our short animation about social care, along with other introductory animations. Includes voice over and subtitles.
Our information sheet on social care, including getting your needs assessed, who pays for any agreed care services and how to use direct payments for choice and control over services.
Our information sheet on your options when thinking about continuing to work with MND or leaving employment.
Our information sheet about how to access this fully funded health and social care, if your primary healthcare needs have become urgent and complex.
Our information sheet about personal health budgets, available in England to help give you more control over the healthcare services you receive.
A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Support for carers, family members and partners

Our comprehensive guide for unpaid or family carers to help them think about their own wellbeing. Available as the full guide or section by section.
A leaflet with basic facts about MND and how to find out more from the MND Association.
How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.
Our information sheet about how to access this fully funded health and social care, if your primary healthcare needs have become urgent and complex.
A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Support for children and young people

MND Buddies

Web page
Our online activity hub for children aged 4 to 10, providing MND facts in a gentle way through stories, games and activities.
Our storybook for young children with three gentle tales about families affected by MND. See our web page for parents and guardians to find out how to order resources for children and young people.
Our comprehensive guide about MND, for young people and young carers. This is the full guide, but accessible in a web app format for mobile devices.
How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.

Planning ahead and end of life decisions

How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.
This interactive form helps you record your care needs to help guide hospital staff or care workers.
Wear this wristband to let emergency professionals know that you have MND and may be at risk with oxygen therapy. Find out more about the wristband and other alerts on this web page.

MND Alert Card

Resource
Carry this card to let emergency professionals know that you have MND and may be at risk with oxygen therapy. Download the card from this web page for mobile devices. Order the printed card to write key contacts on the back.
Our information sheet about the recommendations from NICE for professionals on the treatment, care and support for people living with MND and their carers.
Our information sheet about the benefits of an early referral to a hospice or palliative team when living with MND.
A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Other formats and languages

Other languages

Web page
Find our main decision-making resources in other languages on this web page, with details about how to get an additional translation if needed.

Our animations

Animation
Our short overviews on MND, Kennedy's disease and selected subjects, in animated format, with voice over and subtitles.