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MND - an overview

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Basic facts about MND and what to think about when newly diagnosed

A leaflet with basic facts about MND and how to find out more from the MND Association.

Our short animation about the disease, along with other introductory animations. Includes voice over and subtitles.

This page contains simple explanations for jargon used in health and social care.

Our booklet providing a short overview about MND.

An audio version of our short overview about MND.

Our comprehensive guide to help manage daily life with MND. Access the guide in full or section by section.

To help with reading difficulties or learning disabilities - endorsed by Mencap.

How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.

An overview of the range of care available with MND or Kennedy's disease.

Our pocket guide to support discussions with professionals, based on the NICE guideline for MND.

This guide explores the likely challenges when living alone with either condition and offers information resources that can help.

This is an interactive form to help you manage your condition and think ahead with MND.

Our information sheet about this slow progressing form of MND.

Our information sheet about this rare form of MND.

An overview to help people with MND, or who have a family history of the condition, to find guidance about genetic counselling and genetic testing.

Our main web page listing to access our information resources about the disease and support.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Our podcast series, giving people with or affected by MND or Kennedy's disease the chance to share their stories.

Information about the research we fund, clinical trials, news and how to get involved.

An overview to help people with MND, or who have a family history of the condition, to find guidance about genetic counselling and genetic testing.

This animation provides guidance about genetic testing to identify changed genes known to play a part in MND. It also explains the need for genetic counselling, which helps you to make an informed decision about whether to get tested.

Kennedy's disease - an overview

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These pages include basic facts about Kennedy's disease and how to find further support.

Our short overview about Kennedy's disease, along with other introductory animations. Includes voice over and subtitles.

Our booklet about Kennedy's disease and available support.

This page contains simple explanations for jargon used in health and social care.

An overview of the range of care available with MND or Kennedy's disease.

This guide explores the likely challenges when living alone with either condition and offers information resources that can help.

A list of all our care information for MND. Many of these resources are inclusive of Kennedy's disease as the two diseases share similar symptoms and physical difficulties.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Mobility, movement, pain and twitching

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An overview about mobility and movement, including the support available.

Our booklet about driving, transport, travel and holidays if you need support with MND or Kennedy's disease.

Our booklet on quality of life, interests and finding different ways to do things.

Guidance on how physiotherapy can help if you have problems with mobility, movement or stiff muscles, and how you can access this support.

How to find support if you experience pain - particularly due to problems with movement or mobility.

This information sheet looks at ways to make daily life easier by using a range of equipment, including wheelchairs, and how to access this support.

This information sheet explains how environmental controls can help you remain independent around your home, and provides information on how to access this technology.

Guidance on the types of health and social care you may need with MND or Kennedy's disease, including treatments and medication.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

Speech and communication

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Guidance on support for problems with speech and communication.

Information about how to access support if you have problems with speech and communication, with either MND or Kennedy's disease.

Our information sheet about how to use a version of your voice on communication aids or record messages to use at a later date.

Our short overview about how to use a version of your own voice on communication aids, along with other introductory animations. Includes voice over and subtitles.

How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.

Guidance about which communications aids to use, whether to try voice banking and to access some items on loan.

This interactive form helps you record your care needs to help guide hospital staff or care workers.

Guidance on the types of health and social care you may need with MND or Kennedy's disease, including treatments and medication.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

Swallowing, eating and drinking

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Guidance about difficulties with swallowing, eating and drinking, including problems with saliva.

To help people with MND adapt how they eat and drink, if needed. It includes information, tips and easy-swallow recipes.

The web app version of this guide, for use on screens and mobile devices. To help people with MND adapt how they eat and drink, if needed. It includes information, tips and easy-swallow recipes.

Information to help manage concerns about swallowing difficulties, saliva, coughing and choking with MND.

Guidance to help with decision-making about tube feeding, if you have problems with swallowing, eating or drinking.

Guidance on the types of health and social care you may need with MND or Kennedy's disease, including treatments and medication.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

Researchers at Southampton University developed this web-based patient decision aid for people with MND, who are considering tube feeding with a gastrostomy tube.

myTube explores tube feeding through user videos and information (developed by SITraN – the Sheffield Institute for Translational Neuroscience).

Emotions, thinking and behaviour

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Guidance on emotional and psychological support. This web page also includes information on changes to thinking and behaviour which can affect some people with MND.

Our booklet about the types of therapy available to help with difficult emotions or psychological support.

Our booklet about possible changes to thinking and behaviour with MND, to support people with MND, their families and carers.

How to open conversations about your diagnosis with family, children, friends, colleagues and professionals.

Our booklet on quality of life, interests and finding different ways to do things.

This guide explores the likely challenges when living alone with either condition and offers information resources that can help.

Our information sheet about these additional therapies that some people find helpful to ease symptoms or feelings of stress.

Guidance on the types of health and social care you may need with MND or Kennedy's disease, including treatments and medication.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

Guidance on intimacy for anyone affected by MND.

Breathing problems

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Guidance on breathing problems and available support, including decision-making around assisted ventilation.

Our information sheet about the way MND can affect breathing and how symptoms can be managed.

Our information sheet on the types of assisted ventilation that can support breathing.

Our information sheet on how ventilation can be withdrawn if wished, including questions to raise with the professionals who support.

Our information sheet on what to think about with air travel if you wish to take non-invasive ventilation or other equipment on the journey.

Guidance on the types of health and social care you may need with MND or Kennedy's disease, including treatments and medication.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

Videos about assisted ventilation from people with or affected by MND, part-funded by the MND Association and developed by SITraN, the Sheffield Institute for Translational Neuroscience.

Treatments and medication

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This web page looks at the treatments and medications available to support you with MND.

An overview of the range of care available with MND or Kennedy's disease.

Our pocket guide to support discussions with professionals, based on the NICE guideline for MND.

This interactive form helps you record your care needs to help guide hospital staff or care workers.

Our information sheet about the recommendations from NICE for professionals on the treatment, care and support for people living with MND and their carers.

Our information sheet about the benefits of an early referral to a hospice or palliative team when living with MND.

Our information sheet about riluzole, the only drug to be licensed in the UK to help prolong survival with MND by several months.

Guidance on how physiotherapy can help if you have problems with mobility, movement or stiff muscles, and how you can access this support.

Our information sheet about these additional therapies that some people find helpful to ease symptoms or feelings of stress.

How to find support if you experience pain - particularly due to problems with movement or mobility.

Our information sheet about how to access this fully funded health and social care, if your primary healthcare needs have become urgent and complex.

Our information sheet about personal health budgets, available in England to help give you more control over the healthcare services you receive.

An overview to help people with MND, or who have a family history of the condition, to find guidance about genetic counselling and genetic testing.

Guidance on the types of health and social care you may need with MND or Kennedy's disease, including treatments and medication.

For further reading on symptoms, support and our services, when living with or affected by MND or Kennedy's disease.

Information about the research we fund, clinical trials, news and how to get involved.

A hub to find our other resources - including translations, content for professionals, research sheets, lists of organisations and health apps.

Personal care

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Suggestions on ways to manage everyday personal care tasks such as washing, dressing and intimate care with MND.

Guidance about how to prolong independence with daily routines and intimate personal care, and how to get support when needed.

Our short animation about social care, along with other introductory animations. Includes voice over and subtitles.

Our information sheet on social care, including getting your needs assessed, who pays for any agreed care services and how to use direct payments for choice and control over services.