Publication dates

MND: How to find out more
11/18
11/21
2

What you should expect from your care (NICE pocket guide)
05/19
05/22
2

Living with MND
07/19
07/22
2

Understanding my needs (Interactive)
12/18
12/21
1

Understanding my needs
12/18
12/21
1

MND Checklist (Interactive)
12/18
12/21
1

MND Checklist
12/18
12/21
1

An easy read guide to motor neurone disease
08/18
08/21
1

An introduction to MND
12/18
12/21
2

Caring and MND: quick guide
12/18
12/21
1

Caring and MND: support for you
Under revision
01/16
01/19
1

When someone close has MND: a workbook for children aged four to ten
Only available as a printed resource - for details see our resources for families children and carers on our information page. 
Under revision
08/16
08/19
1

So what is MND anyway?
Under revision
03/16
03/19
1

Making the most of life with MND
11/17
11/20
2

Eating and drinking with motor neurone disease (MND)
02/17
02/20
3

End of life: a guide for people with MND
09/17
09/20
2

Finding your way with bereavement
12/18
12/21
2

Telling people about MND
07/20
07/23
2

Emotional and psychological support
07/20
07/23
2

Changes to thinking and behaviour with MND
07/20
07/23
2

1A - About the NICE guideline on MND
08/19
08/22
2

1B - Health information in other languages and formats
11/18
11/21
2

1C - Where can I find the information I need?
08/17
08/20
4

1D - How we use your information
09/18
09/21
2

2B – Kennedy’s disease
05/19
05/22
2

2C – Primary lateral sclerosis
12/18
12/21
2

2D - Progressive muscular atrophy
07/20
07/23
1

3A – MND care centres and networks
03/18
03/21
3

3D - Hospice and palliative care
08/17
08/20
2

5A – Riluzole
07/20
07/23
1

6A – Physiotherapy
12/19
12/22
1

6B – Complementary therapies
12/18
12/21
1

6C - Managing pain
03/19
03/22
2

7A – Swallowing difficulties
09/20
09/23
2

7B – Tube feeding
03/19
03/22
1

7C - Speech and communication support
10/19
10/22
2

7D - Voice banking and message banking
07/20
07/23
1

8A – Support for breathing problems
05/19
05/22
1

8B – Ventilation for motor neurone disease
05/19
05/22
1

8C - Withdrawal of ventilation with MND
07/17
07/20
2

8D - Air travel and ventilation for motor neurone disease
05/19
05/22
1

10A – Benefits and entitlements
10/20
04/21
2

10B – What is social care?
Previously titled 'Direct payments and personalisation'
12/19
12/22
1

10C – Disabled Facilities Grants
09/18
09/21
1

10D – NHS Continuing Healthcare
12/19
12/22
1

10E – Work and motor neurone disease
01/18
01/21
1

10F – Personal health budgets
Previously titled 'Your rights to social care' - this content is now included in sheet 10B
12/19
12/22
1

10G - Support for families with children
06/17
06/20
2

11A – Clothing
08/17
08/20
1

11B – Mouth care
12/18
12/21
1

11C - Equipment and wheelchairs
05/19
05/22
2

11D - Managing fatigue
Under revision
11/16
11/19
3

11E - Environmental controls
09/19
09/22
2

12A – Driving
To be converted into a new 'Getting around' booklet 2020
08/16
08/19
3

12B – Choosing the right vehicle
To be converted into a new 'Getting around' booklet 2020
08/16
08/19
4

12C – Travel and transport
To be converted into a new 'Getting around' booklet 2020
04/16
04/19
3

12D – Planning a holiday
To be converted into a new 'Getting around' booklet 2020
04/16
04/19
4

13A – Sex and relationships for people with MND
Under revision
04/16
04/19
2

13B – Sex and relationships for partners of people with MND
Under revision
04/16
04/19
2

14A – Advance Decision to Refuse Treatment (ADRT) and advance care planning
04/18
04/21
1