Publication dates
Please see the drop down options below for the publication dates of our resources. This can help you check if you have the most up to date copy. Each entry shows:
Title of resource (links to publication when clicked)
Last revision date (month and year)
Next revision date (month and year)
Version number (this show if any updates have been made since the last revision date)
Guides and introductory information
MND: How to find out more
11/18
11/21
1
What you should expect from your care (NICE pocket guide)
05/19
05/22
1
Living with MND
07/19
07/22
1
Understanding my needs (Interactive)
12/18
12/21
1
Understanding my needs
12/18
12/21
1
MND Checklist (Interactive)
12/18
12/21
1
MND Checklist
12/18
12/21
1
An easy read guide to motor neurone disease
08/18
08/21
1
An introduction to MND
12/18
12/21
1
Caring and MND: quick guide
12/18
12/21
1
Caring and MND: support for you
Under revision
01/16
01/19
1
When someone close has MND: a workbook for children aged four to ten
Only available as a printed resource - for details see our resources for families children and carers on our information page.
Under revision
08/16
08/19
1
So what is MND anyway?
Under revision
03/16
03/19
1
Making the most of life with MND
11/17
11/20
2
Eating and drinking with motor neurone disease (MND)
02/17
02/20
3
End of life: a guide for people with MND
09/17
09/20
2
Finding your way with bereavement
12/18
12/21
1
Telling people about MND
07/20
07/23
1
Emotional and psyhological support
07/20
07/23
1
Changes to thinking and behaviour with MND
07/20
07/23
1
Information sheets
1A - About the NICE guideline on MND
08/19
08/22
2
1B - Health information in other languages and formats
11/18
11/21
2
1C - Where can I find the information I need?
08/17
08/20
4
1D - How we use your information
09/18
09/21
2
2B – Kennedy’s disease
05/19
05/22
2
2C – Primary lateral sclerosis
12/18
12/21
2
2D - Progressive muscular atrophy
07/20
07/23
1
3A – MND care centres and networks
03/18
03/21
3
3D - Hospice and palliative care
08/17
08/20
2
5A – Riluzole
07/20
07/23
1
6A – Physiotherapy
12/19
12/22
1
6B – Complementary therapies
12/18
12/21
1
6C - Managing pain
03/19
03/22
2
7A – Swallowing difficulties
01/17
01/20
2
7B – Tube feeding
03/19
03/22
1
7C - Speech and communication support
10/19
10/22
2
7D - Voice banking and message banking
07/20
07/23
1
8A – Support for breathing problems
05/19
05/22
1
8B – Ventilation for motor neurone disease
05/19
05/22
1
8C - Withdrawal of ventilation with MND
07/17
07/20
2
8D - Air travel and ventilation for motor neurone disease
05/19
05/22
1
10A – Benefits and entitlements
07/20
04/21
1
10B – What is social care?
Previously titled 'Direct payments and personalisation'
12/19
12/22
1
10C – Disabled Facilities Grants
09/18
09/21
1
10D – NHS Continuing Healthcare
12/19
12/22
1
10E – Work and motor neurone disease
01/18
01/21
1
10F – Personal health budgets
Previously titled 'Your rights to social care' - this content is now included in sheet 10B
12/19
12/22
1
10G - Support for families with children
06/17
06/20
2
11A – Clothing
08/17
08/20
1
11B – Mouth care
12/18
12/21
1
11C - Equipment and wheelchairs
05/19
05/22
2
11D - Managing fatigue
Under revision
11/16
11/19
3
11E - Environmental controls
09/19
09/22
2
12A – Driving
To be converted into a new 'Getting around' booklet 2020
08/16
08/19
3
12B – Choosing the right vehicle
To be converted into a new 'Getting around' booklet 2020
08/16
08/19
4
12C – Travel and transport
To be converted into a new 'Getting around' booklet 2020
04/16
04/19
3
12D – Planning a holiday
To be converted into a new 'Getting around' booklet 2020
04/16
04/19
4
13A – Sex and relationships for people with MND
Under revision
04/16
04/19
2
13B – Sex and relationships for partners of people with MND
Under revision
04/16
04/19
2
14A – Advance Decision to Refuse Treatment (ADRT) and advance care planning
04/18
04/21
1