Welcome to the Chiltern Branch

The branch is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers.


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Latest News

Join us at our AGM

We are holding our Annual General Meeting on, Thursday 15 April 2021, at 2.30pm, virtually on Zoom.

We do hope that you will be able to join us as we reflect over our activities of the last year.  In addition to the formalities of the AGM itself, we are also delighted to welcome Dr Nick Cole, Head of Research with the Motor Neurone Disease Association, who will talk about “What’s the latest in Motor Neurone Disease research?”  We are sure it will be a very informative and enjoyable session.

In order for you to join the AGM we will need to send you the instructions for the link to the meeting, please email chilternMNDbranch@aol.com and a link will be sent to you.

Could you be an Association Visitor (AV)?

Do you enjoy listening to and helping people? Are you looking for a volunteering role where you can do just that and fit it in around your family, studies or other commitments?

By becoming an Association Visitor (AV), you can make a real difference to the lives of people affected by motor neurone disease (MND).

Visitors offer free and confidential emotional support which helps to reduce the sense of isolation experienced by many people affected by the disease. They also provide information about the Association and other services that helps people to make informed choices.

As an AV you will keep in regular contact with people with MND, their families and carers. This can be done either by phone, email or face-to-face visits, depending on what suits you and the person you are supporting.

Join our local team and make new friends - use your existing skills and learn new ones!

Our heartfelt thanks to CAWC

Our thanks go to the Chilterns American Womens Club (CAWC) who have chosen to fund an important project that will benefit many local people living with MND over the next two years. This will include the project receiving 100% of the funds raised from their 33rd annual Christmas Bazaar, which in view of the current Covid-19 situation this year will be virtual.

The money raised by CAWC will be used to fund a Breathing Support project. This NHS led project that will help local people with MND to manage the serious breathing difficulties caused by the disease. It will allow early intervention, 1:1 dedicated care from a specialist physiotherapist, the teaching of breathing management techniques and the loan of respiratory technology to be used at patients' homes. The project will also help to train and educate healthcare professionals, patients and carers to identify the early signs of respiratory failure. We are hoping the project will act as a case study for treatment and care to be replicated elsewhere in the country.

The project is led by Dr Faeqa Hami, Consultant in Palliative Medicine from Buckinghamshire Health NHS Trust, who says - "The objective of this project is to offer high quality assessments and clinical support for patients and their carers, and the project team is delighted to receive the support of the CAWC in facilitating this work".

Shop at Amazon, support the charity

If, like many of us, you are a regular customer of Amazon then did you know they run a charitable donations scheme called Amazon Smile? Amazon Smile is a separate website that offers exactly the same products at the same prices as the main website. The only difference is that Amazon donate 0.5% of the net purchase price to your chosen charity. So why not switch to purchasing products through https://smile.amazon.co.uk/ and select the Motor Neurone Disease Association as your chosen charity?

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Could you bee our new branch Chair?

We are currently seeking a new Chair to lead our Branch after our previous Chair stepped down at our recent AGM.

This is a voluntary role that requires around 2-3 hours commitment per week. It involves organising and running Committee meetings, supporting Branch volunteers and fundraisers, ensuring Branch compliance with the charity's policies and being a local ambassador for the Association. All expenses are reimbursed.

We are seeking someone with good leadership, communication, facilitation and delegation skills. If you would like more information please contact Adele Petcher via adele.petcher@mndassociation.org or call 0345 3751854

JustGiving page for donations to the Branch

If you or your family or friends wish to make a donation to the Branch for any reason, you can now do so by means of a JustGiving page that we have set up for that purpose at: www.justgiving.com/chilternmnda

The page will accept text donations to 70070 using the code MNDA66 as well as by credit card, is completely secure and has the great advantage to our Treasurer that it will automatically claim Gift Aid on donations that qualify, and that increases the amount donated by 25% at no cost to the donor.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262