About Us

The Chiltern branch of the MND Association was founded in 1992 with the sole aim of serving all those in the area who are affected by MND. This includes people with MND, their carers, family and friends.

The Branch has a team of trained Association Visitors who offer a befriending role, providing support, information, and an ongoing link with Association to people living with MND.

‘Care and Cared For’

We run informal ‘Care and Cared For’ meetings for people living with MND as well as for their carers and family members. If you are a person living with MND or are caring for, or are a family member of someone with the disease, you would be more than welcome to join this group – it is very informal and will give you an opportunity to meet with and chat to others going through the same experience whilst you enjoy a cup of tea and a piece of cake.

The meetings are usually held in the Cedar Barn on Barn Avenue, off Cedar Avenue, Hazlemere HP15 7BQ from 2:00pm – you will find dates on the Events page. The Barn is fully accessible and there is ample parking.

Information about the meetings is always included in our newsletters, and if you would like anything further information, please contact Cyndy Mepham at chiltern@mndassociation.org or 07716 667 582.

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Fundraising and raising awareness are also very important aspects of Branch activities, and we organise a variety of events throughout the year.

The Branch is run entirely by volunteers and we are always interested in hearing from people who can help with events or who want to get involved with running the Branch.

For information about the work of the MND Association, and up to date information regarding the disease, care and research, please visit the Association’s main website: www.mndassociation.org

Branch Area The Chiltern branch covers Buckinghamshire south of Milton Keynes together with parts of East Berkshire. This includes the following postcode areas: HP 5 - 22 and SL1, 2, 7, 8 and 9.

Officers and Key Branch Committee Members

Chairman: Richard Coleman (acting)

Secretary: Vicki Walduck

Treasurer: John Jefkins

Social Media: Laura White

The Committee members can be contacted by email at: chiltern@mndassociation.org.

Other Contacts Adele O'Toole is the Association's Regional Care Development Adviser working in the Branch area, who has detailed knowledge of the care and management of MND. Working closely with local statutory services and community care providers she is able to provide support and advice to people with MND and their families. She can be contacted by phone on 03453 751854 or 07831 349395 or by email at adele.otoole@mndassociation.org

Jo Campbell is our Volunteering Development Co-ordinator (VDC). VDCs are Regionally based staff who provide advice and support to Branches and Groups. She can be contacted by phone on 07831 098365 or by email at : jo.campbell@mndassociation.org

MND Connect: 0808 802 6262

MND Connect is a helpline for those with MND, their families, carers and friends, as well as a source of information for Health and Social Care professionals.

It is available Monday to Friday 9.00am-5.00pm and 7.00pm-10.30pm. Calls to this number are free from landlines and mobile phones within the UK and do not appear on itemised bills.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262