I am pleased to tell you we have a new Motor Neurone Disease (MND) Association group called the Fylde and Wyre group. We launched on Global Awareness day the 21st of June.
I am Joanne and I am the Group Correspondent, I am also sadly a carer for my mum who has bulbar MND, so I know first hand unfortunately what it’s all about.
Since the closure of the previous group people living with MND have had support from regional staff and of course the amazing team at Lancashire and South Cumbria MND Care and Research Centre (previously known as Preston MND Care Centre) People with the disease, their carers and families have continued to access support grants directly from The Association. Now the group is in place we can also offer local support and be a friendly face to everyone affected by MND.
Our group was set up to provide support, fundraise, raise awareness, promote education and campaign on behalf of the MND Community. Although we only launched a few weeks ago we have already achieved quite a bit. Blackpool Cricket Club have made us their charity of the year and have already started fundraising for the group and in September we will be working closely with Blackpool and Fylde college on some events. Plus, lots more to come. All to benefit people living with MND their carers and families in this area. Other organisations like Lytham Tennis Club have put on matches for us, raising just under £3,000. Thank you!
Hope you enjoy this edition of the newsletter (please send any articles or news you wish to share to our editor Ammar) The newsletter will continue to be produced more regularly, we intended to start off small, but a lot is happening. If you prefer to receive by email, please let me know at – Murrjo1@aol.com
We are a small planning group and are still recruiting volunteers, if you can help in any way at all please contact Sarah Milner our Volunteer Co-ordinator, details in the newsletter, maybe you would like to put on an event or have an idea please get in touch
Joanne Murray, Group Correspondent
For more information about the different events and activities organised by the group in order to provide support, raise awareness, and fundraise on behalf of people living with MND, please contact us.