Welcome to the King's Lynn Support Group

Could you volunteer with us?

The group is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers.

We're after people to join our group as Association Visitors and admin volunteers. If you, or someone you know is interested, and live in the King's Lynn or West Norfolk area, please get in touch with Jane by emailing janelewis321@btinternet.com.

MNDA Walk To D'Feet

About us

Three MND Association Visitors in the Kings Lynn and West Norfolk area offer confidential, emotional support and accurate information to people with MND, their families and carers, helping them to access the right services and equipment. These trained volunteers act as a point of contact for people living with MND, staying in touch by phone, email or face to face visits.

Support meetings for people with MND, their families and carers are held every three months at the Tapping House Hospice in Hillington. Former carers and family members are also very welcome to attend. Meetings normally start at 11.00 with coffee and a relevant speaker, followed by a light lunch.

An informal Carers’ Friendship Group meets monthly for coffee, every third Wednesday, at 11.00 am in the Café at Tapping House, for carers and former carers to chat and exchange information and ideas.

The Support Group fundraising events aim to provide funds for small ‘Care Grants’ to local people with MND, following requests to the Association from health care professionals or ‘Quality of Life Grants’ requested by Association Visitors, health care professionals or people with MND.

CORONAVIRUS INFORMATION FOR PEOPLE LIVING WITH MND AND THEIR CARERS

Please see the MND Association Coronavirus hub

Information is reviewed daily and updated as appropriate

Contact Numbers West Norfolk Area

We do understand that COVID-19 places additional pressures on people affected by MND, and that self-isolation can result in a feeling of loneliness. But you are not alone and the NHS, Social Services, MND Association and other agencies will still be available to advise and support you. Please see below a list of useful contact numbers:

Nursing support

HUB Call Centre for Community Nurses (District Nurses) 24hrs 7 days a week including bank holidays - 01553 668777

Emergency Health Care

Telephone - 999
Non-emergency health advice and out of hours GP - 111

Care Swifts and Night Owls (24 hours)

Provides free help and support if you have unplanned need at home but do not need emergency service (including falls) - 344 800 8020

Social Services Adult Care - 0344 800 8020
Carers Matter Support - 0800 0831 148

Respiratory Service at Papworth

Patient 24hr helpline - 01223 638365

Palliative and Hospice at Home care

Multi-agency Hospice at Home team - 01553 668526
Tapping House general number - 01485 601700

Fresenius Kabi Helpline (24hr) - 0808 100 190

Other services do not provide 24hr cover but you can leave messages

Gill Newton MND Association Care Service Navigator - 07810 750122 gill.newton@mndassociation.org
Trish Moore MND Association Care Service Navigator - 07813 094820 trish.moore@mndassociation.org
MND Connect - 0808 802 6262

West Norfolk Neuro Team (including neuro nurses) - 01553 668599 - Community.neuro@nchc.nhs.uk

Dietician - 01553 613613/01553 613507
MacMillan Nurse Support - 01553 613413

Support us

PLEASE SUPPORT OUR LOCAL EMERGENCY APPEAL! 

We've launched a  'Just Giving' Emergency Appeal, for online donations to maintain vital support for local people living with MND, their families and carers. Cancelling our June and July fundraising events has had a big impact on our income and ability to support people in this area.

People in West Norfolk turn to the Group for practical advice, information and support. Importantly, they can apply for financial grants to help improve their quality of life.

https://www.justgiving.com/fundraising/kingslynnandwestnorfolksupportgroupemergencyappeal

Please share the link with family, friends and colleagues!

We do hope that it will be possible to rearrange some of our fundraising activities in September or Autumn, such as the Walk to D'feet MND, the Plant Sale and Bike for Brian at Watlington, if it is safe to do so.

MND Register poster

Upcoming Events

The Kings Lynn Support Group is extremely grateful to the Norfolk Community Foundation who have  provided us with very generous funding. This donation has been given specifically to deliver summer fruit baskets and cheese boxes to everyone we are in touch with, who is living with MND in Kings Lynn and West Norfolk.

These will be delivered by Accent Fresh of Downham Market and each person with MND will receive baskets in early June, early July and early August.

Jenny Bevan, Head of Programmes at NCF said 'Norfolk Community Foundation is delighted to support this project. We hope that it will help to lift spirits at this difficult time and be enjoyed by people with Motor Neurone Disease and their families.'

Previous events: Walk to D'Feet (15 June), Carer Friendship Group (19 June), plant sale (22 June), support meeting (12 July), Bike for Brian (28 July),  40th Year Commemorative Tree Planting at Tapping House Hospice (1 Nov), Support Group Meeting (1 Nov), Carers Friendship Group (15 Jan) Support Group Meeting (31 Jan)

Latest News

New Year Donation

We are very grateful to Daniel Touchin for presenting a cheque for £2,370 to the Kings Lynn Support Group from a New Year Shoot, held in memory of his father, Martin Touchin. A great success and special thanks to Chantall and Stuart Ridd-Jones at Harrowden Turf at Hockwold,  for allowing Daniel and colleagues to organise the shoot and to the gamekeepers at The Shadwell Estate for their generous support and donation. This amount will make a real difference for local people living with MND

Next Support Meeting at Tapping House, The Norfolk Hospice, Hillington, Friday 1st May 11.00 am to 1.00 pm - Speaker,  Dr Kirsten Kelly, Research Programmes & Partnership Manager of the MND Association, will provide a fascinating insight into current research. 'Research isn't just for researchers'. People living with MND, their families and carers are very welcome, together with former carers. Coffee and a light lunch are provided. Please let Jane Hoare know if you would like to attend - text/phone 07920 443513, or email janehoare@live.co.uk

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262