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Welcome to the King's Lynn Support Group

CORONAVIRUS INFORMATION FOR PEOPLE LIVING WITH MND AND THEIR CARERS

Please see the MND Association Coronavirus hub

Information is reviewed daily and updated as appropriate

Contact Numbers West Norfolk Area

We do understand that COVID-19 places additional pressures on people affected by MND, and that self-isolation can result in a feeling of loneliness. But you are not alone and the NHS, Social Services, MND Association and other agencies will still be available to advise and support you. Please see below a list of useful contact numbers:

Nursing support

HUB Call Centre for Community Nurses (District Nurses) 24hrs 7 days a week including bank holidays - 01553 668777

Emergency Health Care

Telephone - 999
Non-emergency health advice and out of hours GP - 111

Care Swifts and Night Owls (24 hours)

Provides free help and support if you have unplanned need at home but do not need emergency service (including falls) - 344 800 8020

Social Services Adult Care - 0344 800 8020
Carers Matter Support - 0800 0831 148

Respiratory Service at Papworth

Patient 24hr helpline - 01223 638365

Palliative and Hospice at Home care

Multi-agency Hospice at Home team - 01553 668526
Tapping House general number - 01485 601700

Fresenius Kabi Helpline (24hr) - 0808 100 190

Other services do not provide 24hr cover but you can leave messages

Gill Newton MND Association Care Service Navigator - 07810 750122 gill.newton@mndassociation.org
Trish Moore MND Association Care Service Navigator - 07813 094820 trish.moore@mndassociation.org
MND Connect - 0808 802 6262

West Norfolk Neuro Team (including neuro nurses) - 01553 668599 - Community.neuro@nchc.nhs.uk

Dietician - 01553 613613/01553 613507
MacMillan Nurse Support - 01553 613413

MNDA Walk To D'Feet

About us

Three MND Association Visitors in the Kings Lynn and West Norfolk area offer confidential, emotional support and accurate information to people with MND, their families and carers, helping them to access the right services and equipment. These trained volunteers act as a point of contact for people living with MND, staying in touch by phone, email or face to face visits.

Support meetings for people with MND, their families and carers are held every three months at the Tapping House Hospice in Hillington. Former carers and family members are also very welcome to attend. Meetings normally start at 11.00 with coffee and a relevant speaker, followed by a light lunch.

An informal Carers’ Friendship Group meets monthly for coffee, every third Wednesday, at 11.00 am in the Café at Tapping House, for carers and former carers to chat and exchange information and ideas.

The Support Group fundraising events aim to provide funds for small ‘Care Grants’ to local people with MND, following requests to the Association from health care professionals or ‘Quality of Life Grants’ requested by Association Visitors, health care professionals or people with MND.

Could you volunteer with us?

The group is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers.

We're after people to join our group as Association Visitors and admin volunteers. If you, or someone you know is interested, and live in the King's Lynn or West Norfolk area, please get in touch with Jane by emailing janelewis321@btinternet.com.

Latest News

Just Giving Emergency Appeal - a fantastic £1165.00 was raised from our recent Emergency Appeal. We are so grateful to everyone who supported the appeal, THANK YOU !

 

HOME FUNDRAISING FOR CHRISTMAS ! - Find out more

Some great fundraising ideas for the next few weeks - to raise funds for the local group or for the national association. To support local people with MND, just enter 'Kings Lynn Group' in the relevant box when you register.

So far we have been able to respond to all local requests for Care, Quality of Life or Carer Grants this year, but with so many fundraising events cancelled it is becoming more difficult to keep up.

If you like the look of any of these, please join in - or dream up your own ideas?

 

Celsius Rose Croix Chapter No. 166 - we have been fortunate to receive an amazing  donation of £1,000 from this Masonic Lodge, which has enabled us to respond to the recent requests received for Care Grants for people living with MND and grants for Carers, despite the cancellation of our fundraising events this year.

Tesco Bags of Help - a very generous donation of £500 from Tesco earlier in the summer, has gone a long way to help us to support requests for Quality of Life Grants for people with MND and their carers.

New Volunteer Fundraisers - Our two Fundraising Volunteers, Kath and Anne, are busy looking for more opportunities for applications to help with funding, so that we are able to continue to provide grants in this way.

 

Do you know of any organisations or businesses who support charitable activities, who might help us? Please let us know!

 

Summer Fruit, Cheese and Flower deliveries - people with MND in our area were each treated to three deliveries during the summer, thanks to the Norfolk Community Foundation. These were very much appreciated and enjoyed by everyone, during what has been such a difficult time of isolation.

 

ACT TO ADAPT CAMPAIGN - the Association has just launched a  nationwide campaign to improve access to home adaptations and to the Disabled Facilities Grant for people living with MND. Please follow the link and send a message to your local district or county councillor and leave a message of support on the 'jigsaw'

https://www.mndassociation.org/get-involved/campaigning/take-action/act-to-adapt/

Together with Norwich Branch we are aiming to contact all the Norfolk councils and your support would help.

 

Leading research into the future with new campaign

Recently launched on BBC Breakfast by Doddie Weir and Ammar Al-Chalabi, find out more on the latest campaign

 

MND Register poster

Upcoming Events

More news on upcoming events coming soon

 

Previous events: Walk to D'Feet (15 June), Carer Friendship Group (19 June), plant sale (22 June), support meeting (12 July), Bike for Brian (28 July),  40th Year Commemorative Tree Planting at Tapping House Hospice (1 Nov), Support Group Meeting (1 Nov), Carers Friendship Group (15 Jan) Support Group Meeting (31 Jan)

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262