Three MND Association Visitors in the Kings Lynn and West Norfolk area offer confidential, emotional support and accurate information to people with MND, their families and carers, helping them to access the right services and equipment. These trained volunteers act as a point of contact for people living with MND, staying in touch by phone, email or face to face visits.
Support meetings for people with MND, their families and carers are held every three months at the Tapping House Hospice in Hillington. Former carers and family members are also very welcome to attend. Meetings normally start at 11.00 with coffee and a relevant speaker, followed by a light lunch.
An informal Carers’ Friendship Group meets monthly for coffee, every third Wednesday, at 11.00 am in the Café at Tapping House, for carers and former carers to chat and exchange information and ideas.
The Support Group fundraising events aim to provide funds for small ‘Care Grants’ to local people with MND, following requests to the Association from health care professionals or ‘Quality of Life Grants’ requested by Association Visitors, health care professionals or people with MND.
Bike for Brian - Sunday, 28th July at Watlington, near Kings Lynn. An 8 mile, family friendly sponsored bike ride for MND Association. Registration from 10.00 am. Contact firstname.lastname@example.org or 01366 328242.
Previous events: Walk to D'Feet (15 June), Carer Friendship Group (19 June), plant sale (22 June), support meeting (12 July).
Jeremy Vine, Sue Heal (Norwich), Peter Aldous MP, Martin Burnell and Dianne Hepburn (Kings Lynn) at parliamentary meeting.
Norfolk campaigners travelled to Westminster on Wednesday 3 July to join TV and radio presenter Jeremy Vine, MP’s, Peers, Clinicians and representatives of the Motor Neurone Disease (MND)Association and Marie Curie to mark the release of an APPG* parliamentary inquiry report on Terminal Illness, which deems the current benefits system for dying people `not fit for purpose’
The MND Association and its Norfolk Supporters have been campaigning for a change in the law under the `Scrap 6 Months’ banner for the last year
*APPG - All Party Parliamentary Group, informal cross party groups.
For more information about the different events and activities organised by the group in order to fundraise on behalf of people living with MND, please contact us.