Portsmouth and South East Hants Group

Donate to our Local Group - Just Giving

Please read out latest Newsletter

Welcome to the Portsmouth and South East Hants Group

This group covers Portsmouth, Gosport, Havant, Petersfield, and the surrounding areas with a PO postcode.

The group is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers.

The Portsmouth Group is a small group that provides support to people affected by Motor Neurone Disease (MND). We are made up of an Area Support Coordinator and 4 Support Volunteers who are able to provide you with emotional and practical support from diagnosis. We are there for you in an informal capacity to ensure you are getting the right support at the right time as well as being able to listen to your concerns and worries.

We provide a monthly Check-in and Chat group at the Living Well Centre in Purbrook on the second Friday of each month 11:30 to 13:15. You would be most welcome to join us to meet others who are also trying to get their head around the diagnosis.

“So pleased I attended the group, I was apprehensive but everyone was so welcoming and I met others from similar backgrounds so we had lots to talk about and not just about MND”

The support volunteers can keep you up to date on what’s happening within the MND Association and the financial and practical support that’s on offer.

You are not alone so please contact us.

Latest News

Please click on the links below for more information

Research Page: Research

Campaigns Get involved: Campaigns

South East Region Online Groups on Zoom

What:              Online group for carers led by Lisa Burnard (Area Support Co-ordinator)

When:              First Tuesday of the Month - 11 am - 12:00 pm

Description:   “A virtual cuppa and friendly chat with other carers in the South East”

Contact:         [email protected]

What:              PMA-PLS support group led by TBC*

When:             Second Monday of each month 5 pm- 6 pm 

Description:   “Meet up with other people living with or affected by PLS or PMA”

Contact:         [email protected]

What:             PILOT GROUP MND Veterans group led by Dawn Pond (ASC)

When:            Fourth Wednesday of each month from 2:30 pm-3:30 pm 

Description:   “A different type of support. Not just about MND but about you, your background, and common interests”

Contact:         [email protected]

What:             Online group for carers led by Justine Cox (Area Support Co-ordinator)

When:            Last Wednesday of each month 6.30 pm-7.30 pm 

Description:   “Looking after you – an evening virtual support group”

Contact:         [email protected]

What:              South East region Peer to Peer support group led by Dawn Pond (ASC) 

When:             Third Tuesday of each month - 11:00 - 12:30 

Description:   “Regional group, the opportunity to meet others with MND across the region”

Contact:         [email protected]

Carers of people with a Tracheotomy and MND online group

Tuesday 16th January at 2 pm

Tuesday 20th February at 6.30 pm

Tuesday 19th March at 2 pm

Tuesday 23rd April at 6.30 pm

Contact: [email protected] for more information

If you are a person affected by MND and need support, please contact MND Connect on 0808 802 6262.

For Free benefits advice please contact 0808 901 0620

We also work with Health and Social care professionals to ensure we are supporting in the way you need us to.

The Volunteers enjoyed a very productive meeting with the Lord Mayor of Portsmouth, covering our National campaigns to lighting up the Spinnaker Tower. The Lord Mayor said he would create as much awareness as possible on his social media outlets and through his colleagues.

Would you like to help?

We are seeking more volunteers to help in Portsmouth and the surrounding areas to join us. If you would like to get involved please contact the volunteering team by emailing [email protected] or calling 01604 611681.

You can also find us on Facebook 

Planning Ahead:

Christmas cards and wrapping now available to order - Christmas cards and wrapping