Isle of Wight Branch

Welcome to the Isle of Wight Branch 

The branch is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers. If you know someone that may be interested in joining the Branch? Please contact [email protected]

Please check out our Facebook page at: www.facebook.com/MNDAIsleofWight

Text to Donate: Text MNDWIGHT to 70085 to donate £5

To donate more please text MNDWIGHT and the amount to 70085

The maximum amount is £20

Thank you for your donation 

If you would like a certificate of appreciation for your donation please email [email protected]

Meet the Branch

Christopher Lund - Branch chair and Association Visitor 

Anne Glentworth - Treasurer

Doreen Gant - Lead Fundraiser/Interim Admin Assistant

Ali Griffiths - Campaigns Contact

Linda Griffiths - Acknowledgements

Tamara Rice  - Webmaster/Social media Lead

Carl Jacobs - Fundraiser/Committee member

Support Groups

The MND Support Group for 2023/2024 will be held at the John Cheverton Centre in the Multi-Function Room between 2.00 p.m. and 4.00 p.m.

The third Thursday of each month

Hosted by our trained Volunteer Chris 

South East Region Online Groups on Zoom

What:              Online group for carers led by Lisa Burnard (Area Support Co-ordinator)

When:              First Tuesday of the Month - 11 am - 12:00 pm

Description:   “A virtual cuppa and friendly chat with other carers in the South East”

Contact:         [email protected]

What:              PMA-PLS support group led by Jo Campbell, Jo Cunnah and Ellen Murdoch*

When:             Second Monday of each month 5 pm- 6 pm 

Description:   “Meet up with other people living with or affected by PLS or PMA”

Contact:         [email protected]

What:             PILOT GROUP MND Veterans group led by Dawn Pond (ASC)

When:            Fourth Wednesday of each month from 2:30 pm-3:30 pm 

Description:   “A different type of support. Not just about MND but about you, your background, and common interests”

Contact:         [email protected]

What:             Online group for carers led by Justine Cox (Area Support Co-ordinator)

When:            Last Wednesday of each month 6.30 pm-7.30 pm 

Description:   “Looking after you – an evening virtual support group”

Contact:         [email protected]

What:              South East region Peer to Peer support group led by Dawn Pond (ASC) 

When:             Third Tuesday of each month - 11:00 - 12:30 

Description:   “Regional group, the opportunity to meet others with MND across the region”

Contact:         [email protected]

Carers of people with a Tracheotomy and MND online group

Tuesday 20th February at 6.30 pm

Tuesday 19th March at 2 pm

Tuesday 23rd April at 6.30 pm

Contact: [email protected] for more information

If you are a person affected by MND and need support, please contact MND Connect on 0808 802 6262.

For Free benefits advice please contact 0808 901 0620

Coming up

Latest News

Please click on the links below for more information

Research Page: Research

Campaigns Get involved: Campaigns

Events/Fundraising

On Saturday 22nd July 2023 we held a ride on a steam train event at Havenstreet. This was enjoyed by People living with and affected by MND and their families.

Although it was a fairly quiet day, people were very generous and we were delighted to have raised £116.63 for the charity. Thank you to Sarah Simpson, the community champion at Asda in Newport for allowing us to collect in the foyer.

Committee members of the IOW branch of the Motor Neurone Disease (MND) Association were last night presented with a cheque for £2000 by Vic Mann and Hillary Searle from the Cycle Island Community Interest Company.  
Nearly 3000 riders took part in a Randonee on the 30th April which raised a total of £14000 which has been divided amongst various island charities. 
The MND branch are extremely grateful to be amongst the chosen charities and say this will really help local people living with MND and their carers.