One in 300 people will be diagnosed with motor neurone disease. Sadly, more than half of those diagnosed die within two years. Almost a quarter of a million people in the UK alive today will develop
Today the All-Party Parliamentary Group (APPG) on MND hosted its second online meeting of the year. A range of topics were discussed by speakers, who were: Sally Light, CEO of the MND Association;
The Motor Neurone Disease Association has launched its Act to Adapt campaign, calling for more accessible homes and a faster and fairer system for delivering housing adaptations for people with MND.
In July 2019, the Department for Work and Pensions (DWP) announced a review of how well the benefits system works for people who are terminally ill. The announcement came in response to campaigning by
A year since the announcement of a review into the benefits system, more than 2,000 have died from MND, many struggling to access the benefits they desperately need. The review, announced in response
The MND Association has received a response to its open letter to the UK and Welsh Governments concerning unpaid carers. While the Welsh Government has provided some tangible proposals to better
More than 3081 supporters have signed an open letter calling on the Government to provide better support to unpaid MND carers during the COVID-19 pandemic. The letter will be sent to the Minister of
The All-Party Parliamentary Group (APPG) on MND hosted its first ever online meeting today to discuss the impact of COVID-19 on the MND community. The meeting was chaired by Andrew Lewer MBE MP,
Caring for a loved one with MND can take a physical and emotional toll, with some carers already struggling to cope and receiving very little support. Life is often hard for MND carers physically,
On 5 June 2020, the All-Party Parliamentary Group (APPG)* on MND is meeting online to discuss the impact of COVID-19 on people with MND, the MND Association and medical research into MND. The speakers