All Party Parliamentary Group (APPG) on MND

As Parliament has been dissolved ahead of a general election, the APPG on MND no longer exists. We will work with MPs after the election to re-establish the Group.

The All-Party Parliamentary Group (APPG) on MND is a cross-party group of MPs and Peers with an interest in MND. The purpose of the group is to increase awareness and understanding of MND amongst parliamentarians and to campaign for better access to high quality services for people affected by MND.

The group was established in 2002 and meets regularly in Parliament. Usually someone living with MND will speak at each meeting.

The officers of the group are:

Chair - Madeleine Moon MP (Bridgend)

Vice Chairs - Christine Jardine MP (Edinburgh West) and Andrew Lewer MP (Northampton South)

Secretary - Chris Evans MP (Islwyn)

The MND Association provides the secretariat to the group. For further information please contact Alison Railton, Public Affairs Manager on alison.railton@mndassociation.org or call 01327 844911.

All-Party Parliamentary Group meeting - picture of MPs in attendance and Martin Burnell who is living with MND

Further information

APPG report on access to PIP

The APPG published a report on access to Personal Independence Payment (PIP) in October 2017. The report was launched at a joint reception with the MND Association.

APPG's 2015 report 'Condemned to Silence'

The APPG’s 2015 report, Condemned to Silence, published the findings of an inquiry chaired by Madeleine Moon MP in autumn 2014. It attracted over 1,700 submissions of evidence from across England, Scotland, Wales and Northern Ireland.

APPG inquiry on specialist palliative care for people

This was the first inquiry to be held by the APPG on MND group and its findings were published in 2011.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262