People living with a terminal illness such as MND should be able to claim benefits without having to fill in a long form, attend a face-to-face assessment, or wait weeks for their benefits to arrive.
The Special Rules for Terminal Illness (SRTI) process is the fast-track process for claiming benefits, meaning people do not have to go through a long and stressful assessment process. However, the SRTI requires a 'reasonable expectation of death within six months', which excludes many people with an unpredictable terminal illness like MND.
As a result of our campaigning, in July 2019, the then-Work and Pensions Secretary Amber Rudd promised to review the SRTI. Over one year on and we have seen very little progress.
We are naturally very disappointed that we are yet to hear back from the DWP on the outcome of their review on how the benefits system supports terminally ill people.
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