Latest News

Read all the latest news from across the Association. You can select a specific category from the drop down list and click 'find' (using the magnifier icon) to see all news for that category. We've also include the option to search by keywords. Again, select your category, enter the key word (s) and click find.

Improving MND Care Survey closed

The Association’s Improving MND Care Survey has now closed. We received almost 1300 responses from people living with MND and their carers about their health, social and continuing care experiences.

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Dear Diary…

People affected by MND are being invited to leave a written legacy for future generations by recording details of a day in their life as part of a long-standing social history project. The Mass

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Riluzole supply issue

We are aware of a reduced supply of the drug riluzole, this is due to some manufacturers ceasing production. We are currently liaising with the Department of Health and Social Care and manufacturers

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For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262