South Wales MDT MND Network Meeting

Date: 8 November 2022

Presentations:

1. MND Smart Trial – Dympna Mcaleer, Research Nurse MND Smart, Neuroscience Research Unit – awaiting consent

2. MND Association Update – Melanie Andrews, Service Development Manager, MND Association

3. Research in the Network – Caroline Bidder, Lead MND Care Coordinator and Yvette Ellis National Head of Research Delivery-Operations – awaiting consent

4. Research – OPITIcals and Microbiome – Professor Chris McDermott, Consultant Neurologist, Sheffield – awaiting consent

5. Update on wheelchairs – Andy Green, Artificial Limb and Appliance Service

6. Database training / clinical reports – Steph Durnan, MND Care Coordinator and Caroline Bidder, Lead MND Care Coordinator

‘Show and tell’

7. Gastrostomy – Adrienne Tunna, Advanced Enteral Feeding and MND Dietitian – awaiting consent

8. Communication – Rebecca Mears, Senior Specialist SLT and Pippa John, Local AAC lead C&VUHB

9. Non-invasive Ventilation – Joe Annandale, Respiratory Clinical Nurse Specialist – awaiting consent

10. Advance Care Planning – Sian Vincent, MND Care Coordinator / Clinical Nurse Specialist Palliative Care

Other Resources:

View recordings

 

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262