South Wales MDT MND Network Meeting
Date: 8 November 2022
Presentations:
1. MND Smart Trial – Dympna Mcaleer, Research Nurse MND Smart, Neuroscience Research Unit – awaiting consent
2. MND Association Update – Melanie Andrews, Service Development Manager, MND Association
3. Research in the Network – Caroline Bidder, Lead MND Care Coordinator and Yvette Ellis National Head of Research Delivery-Operations – awaiting consent
4. Research – OPITIcals and Microbiome – Professor Chris McDermott, Consultant Neurologist, Sheffield – awaiting consent
5. Update on wheelchairs – Andy Green, Artificial Limb and Appliance Service
6. Database training / clinical reports – Steph Durnan, MND Care Coordinator and Caroline Bidder, Lead MND Care Coordinator
‘Show and tell’
7. Gastrostomy – Adrienne Tunna, Advanced Enteral Feeding and MND Dietitian – awaiting consent
8. Communication – Rebecca Mears, Senior Specialist SLT and Pippa John, Local AAC lead C&VUHB
9. Non-invasive Ventilation – Joe Annandale, Respiratory Clinical Nurse Specialist – awaiting consent
10. Advance Care Planning – Sian Vincent, MND Care Coordinator / Clinical Nurse Specialist Palliative Care
Other Resources:
- Publications and References
- ALS FRS Version for patients (ref: Database training presentation)
- Withdrawal of NIV Guidelines – guidance for professionals (ref: NIV presentation)
View recordings