Regional Service Development

“Everyone gets the care they need when they need it.”

A key aim for the Association is that people living with? MND get the care they need when they need it. Excellent care for people living with MND requires a multidisciplinary approach.

We want to ensure everyone with MND has access to multidisciplinary care. Work across the Association is co-ordinated to help achieve this. Find out more about how we are doing this below.

[Place holder] – to be written once we have the structure up and running. Content to include

  • Region geography – and link out to the NHS system structure ICS etc
  • Head role info?
  • Heads of Regional Care Partnerships work within a designated region: Devolved Nations, North, Central and West, and South East. These roles provide strategic leadership to the regional work within the Association strategy. They lead staff and volunteers within the region to ensure that activity is coordinated. They are accountable for improving MND care and supporting people with MND across their designated region, putting people with and affected by MND at the heart of everything we do.
  • Explanation of how Head, SDM and ASC roles fit together in the region

We work in the regions to help with the development of best practice services for people living with MND.

Service Development Managers (SDM)

Our Service Development Managers (SDMs) operate in the regions supporting the provision of best care services, encouraging improvement and innovation. They help to ensure that NICE guidelines and quality standards are being followed, and that Association initiatives are implemented. Their role is to create, manage and develop relationships with key stakeholders including national and regional providers.

SDMs support the development and delivery of statutory and other services through informal influencing, formal negotiation, business case preparation and campaigning for change. They use evidence and intelligence to set priorities and create and implement plans to achieve them. This includes helping services to carry out the Transforming MND Care (TMNDC) audit and act on its results. SDMs bring professionals in the regions together – to find out what is happening in your area contact your local SDM, details below.

Wales & Isle of Man Melanie Andrews
Greater Manchester Melanie Worthington
Devon, Cornwall, Somerset, Dorset, Wilts, Bristol, Glos, Oxford, Hants, Isle of Wight & Channel Islands Neil Drinkwater
East & West Sussex, Bucks, Berkshire Rob Wallis
Cumbria, Lancashire, Yorkshire & Humber, N&NE Lincs, N Derbyshire, North East and Cleveland Sal Hastings
East Anglia, Herts & Essex, C&E Midlands Scott Maloney
Northern Ireland Vincenta Leyden

We work in the regions with individual people and families affected by MND

Area Support Coordinators (ASCs)

Our ASCs work in local regions to ensure the needs of people affected by MND are met.  They allocate Association Visitors to provide direct support. They also work with local branches and groups to maintain social support groups.

ASCs help people affected by MND to resolve particular difficulties eg health or housing issues. To do this they maintain relationships with local health and social care professionals and services. They will escalate any problems that cannot be resolved quickly or that need particular expertise.

Contact MND Connect for details of your local ASC.

We support health and social care professionals to understand MND better and develop their knowledge of the disease and good practice.

We offer a range of guide and information sheets for professionals about MND symptoms to inform practice. We also help professionals to meet the needs of the people they provide care to with through our clear patient information.

We bring professionals together through the MND Professionals’ Community of Practice. This is a peer led group of health and social care professionals encouraging and supporting the development of good care for people living with, or affected by, MND. The shared passion of the community is improving the lives of people affected by MND.

Through our education programme we offer a range of courses, webinars and other events with a focus on MND. Visit our Professional Education and Development web pages to find out more.

To be written when we have content

Content to include

  • Intro to the concepts of innovation and improvement
  • Links to news feed/articles on the website about projects
  • Form (with button) for applying for a grant for innovation

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262