Continuing to help fund the Co-ordinator position within the UK Motor Neuron Disease Clinical Studies Group.
Principal Investigator: Prof Chris McDermott
Co-ordinator: Stacy Young
Lead Institution: University of Sheffield
MND Association Funding: £133,879
Funding dates: January 2021 - July 2025
About the project
This grant covers continued funding for a MND Speciality Coordinator who supports the UK Motor Neurone Disease Clinical Studies Group. The group consists of neurologists, palliative care specialists, patients, carers and other healthcare professionals interested in MND clinical research. They work to increase the number of studies for people with MND to participate in across the UK. The coordinator ensures that eligible studies are included on the UK Clinical Research Network portfolio and that studies have access to support, enabling them to recruit and deliver their research effectively. The COVID-19 pandemic has had a huge impact on MND clinical research so the coordinator role will be essential in getting things up and running again and helping researchers adapt to the new ways of working that will be needed post pandemic.
What could this mean for MND research?
The Coordinator will support the group to ensure that the number of research studies for people with MND to participate in keeps increasing across the UK. As well as this, the role will make sure that studies are able to access support in recruiting and delivering the research for those with MND who are taking part.
Project code: 942-794