Branch news

South Yorkshire branch AGM. Tuesday 18th February 2.00pm.Psalter Lane Sheffield.

Everyone is welcome to join us for the above meeting. As ever, the business part of the meeting will be as brief as possible with plenty of opportunity to chat and catch up with local news during the refreshments.

Sheffield Open Meeting. Research Update. Video Launch.

During a Sheffield open meeting last year, Mel White, took the opportunity to share a video made by Dame Professor Pam Shaw about developments at the Sheffield Institute for Translational Neuroscience SITraN.

People who came to the July 19 meeting at the Botanical Gardens had the chance to hear Pam Shaw's talk live, and it was very well received. She made an appeal for volunteers for the Biomarker project. In addition to people with MND giving their time and providing samples, the researchers also need heathy volunteers for the control arm of the research. More information about the appeal and this project here. Professor Shaw kindly agreed to make a recording of the talk with an introduction by our Patron Suzanne Maguire. Click below.

Cathy Soreny was a guest speaker, updating the group about the progress of the My Breathing Website. Having watched sections of the redesigned and updated site, there was some useful feedback. The website is getting the final adjustments and we look forward to sharing this invaluable project when it is completed.

More research news from the International Symposium Perth Australia December 2019.

Barelegs Brian completes his challenge.

Congratulations to Brian Jackson on completing his BEAT MND challenge to cycle 2019 miles in 2019 & Beat MND. Brian took up cycling again after 55years to raise money and awareness. Previously he wore shorts or a kilt for 12 months, and although they were highly successful fundraisers, this challenge was in a different league... At the beginning of September Brian travelled down to Bury St Edmunds and then cycled for a whole week to Ely, Alconbury, Trapston, Market Harborough, Northampton and Daventry. Brian cycled to the final stage and the grand finish on Saturday at the Giant Bike shop Queens Rd Sheffied where he finished the final 4 miles on a static bike with family, friends and supporters cheering him on. Brilliant Brian. Well done.

The last event marking the 40th Anniversary of the Association in 2019 was a Dad's Army themed Dinner Dance in Rotherham. In addition to the dinner, dance and fundraising activities there was a  rifle and bayonet display by the Pontefract Home Guard and a Dame Vera Lynn tribute. It was a really fun evening, raising funds and awareness. Thanks to Geoff and his team for all the hard work in organising it. Fabulous photos here or there's an album on Flickr

     

40th Anniversary Event

 

On Sunday 6th October, the branch marked the 40th anniversary of the Association with an event at Meadowhall. In addition to the lighting up of the building in MND colours, there was a stand outside the House of Fraser store and an MND branch walk around the mall. We were joined by colleagues from SITraN and our Patron Suzanne.

It was a great opportunity to explain to shoppers and the general public, what happens in MND, how research into a cure is progressing and what the association both nationally and locally is doing to support people

 

Congratulations & Thanks :

To the folk group Artisan for coming along to our last Open Meeting of the year in Sheffield and providing fantastic entertainment. These a cappella musicians with immense songwriting talent and humour were very well received, and hopefully they will return.

To Bridget Hemstock and the Clowne Road Runners for hosting a brilliant Half Marathon event on Sunday 24th November, and to everyone who got involved too. We had a great team of runners and an excellent team supporting us on the day. Bridget has been fundraising for the association ever since her Mum was diagnosed in 2018. This event and others will have raised thousands of pounds and, although her Mum Lorna died earlier this year, Bridget is carrying on with events and challenges in 2020. See the race photos on Flickr

To the organisers and musicians of Hartfest 2019. Lyndsey and Steve Allison with the help of their local landlord John Saynor staged a very successful music festival this autumn. Held at the Blue Bell in Harthill, the event raised a grand total of £2700 for three charities. Phil Booth, one of the musicians, has personal experience of MND and was very pleased that the funds of the  South Yorkshire Branch of the MND Association would benefit from £900. The team invited a photographer from the Rotherham advertiser for the cheque presentation and Ann Quinn was delighted to accept it.

To Jill and John Hill for another excellent Quiz Night in Sheffield. This annual event is really well supported thanks to the brilliant organisation of the evening. There is a different variation of the quiz every year and it's topped off with a quality pie and pea supper. The total raised increases year on year and this year exceeded £1500.

To everyone involved in the recent Folk Concert. For the second year running supporters were entertained by some excellent musicians at the Denby Dale Pie Hall. An extensive programme provided a memorable evening, and the total raised was a just reward for all the hard work put into this event.

To one of our committee members Vicky Paeschel. Vicky was welcomed as one of 3 new trustees at the MND Association AGM in July. Vicky was also very successful this summer in raising awareness of MND in the local press and on local radio, talking about her Big Steps Walk event in Graves Park Sheffield. Over 100 people took part at the August Bank Holiday in glorious sunshine.

To our brilliant and dedicated Social Media Administrator Chloe Allen. Chloe completed a PhD at SITraN in Sheffield and had one of her papers accepted for the programme of the International MND Symposium in Perth Australia. Her talk was entitled " Antioxidant drugs reveal the potential for patient stratification in Motor Neurone Disease." We hope  Chloe will be able to come along to one of our meetings next year, to tell us about her experience and explain about her work.

Thanks to everyone who came along to our Walk to D'Feet at Doncaster. A great way to raise awareness and a really fun event again.

More photos on Flickr

Read our latest branch newsletter here , and important dates and fundraisers coming up will be in  events

 

In need of some peace and calm in a welcoming space? The Cavendish Care Centre Sheffield hold Relaxation Sessions at their centre, for families affected by MND

Clifford House. Whirlow Sheffield:

Opening times. 10.00am - 4.00pm Tues Weds Thurs. Weds 5pm - 7.00pm
A place to relax and socialise within beautiful, peaceful surroundings. Open to everyone affected by an illness that has no cure. There is a monthly timetable of activities to chose from and advice and information from professionals and volunteers. St Lukes Clifford House

"Research Today: Implications for Tomorrow"

This talk, given at the 2018 branch AGM generated a lot of interest. Dr Brian Dickie from the association outlined some of the association funded research projects and explained how they work closely with the fantastic SITraN facility here in Sheffield. The association's research pages give an overview of what is happening, plus fact sheets and information on how to get involved. The research blog gives up to date scientific news, and you can get this sent directly to your own email address.

The Association is constantly updating its Publications and Resources. The link below will help you decide if you want to know more about the many aspects of living with MND on a day to day basis. There are many different formats to chose from and help is always available if you want something explained in more detail.  All the information you need.

To donate directly to the South Yorkshire branch JustGiving page please follow the link below.
https://www.justgiving.com/MNDA-South-Yorkshire

Cheques made payable to MND Association South Yorkshire can be sent to our Treasurer Paul Hebblethwaite 55 Newfield Lane Sheffield S17 3DD or can be paid in directly to the branch account 02972378 sort code 30-96-09

To join your own JustGiving fundraising page to our branch team members page please use the link below and click  join the team. Full instructions are at the bottom of our events and fundraising page.

https://www.justgiving.com/teams/South-Yorkshire-Branch

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262