Branch news

Sheffield Open Meeting. Research Update. Video Launch.

At the last Open Meeting in Sheffield, Mel White, took the opportunity to share a recent video made by Dame Professor Pam Shaw about developments at the Sheffield Institute for Translational Neuroscience SITraN. People who came to the July meeting at the Botanical Gardens had the chance to hear Pam Shaw's talk live, and it was very well received. She also appealed for volunteers for the Biomarker project. In addition to people with MND giving their time and providing samples, the researchers also need heathy volunteers for the control arm of the research. More information about the appeal and this project here. Professor Shaw kindly agreed to make a recording of the talk with an introduction by our Patron Suzanne Maguire. Click below.

Cathy Soreny was our guest speaker, updating the group about the progress of the My Breathing Website. Having watched sections of the redesigned and updated site, there was some useful feedback. The website is getting the final adjustments and we look forward to sharing this invaluable project when it is completed very soon now.

40th Anniversary: Dad's Army Dinner & Meadowhall Event

The last event marking the 40th Anniversary of the Association was a Dad's Army themed Dinner Dance in Rotherham. In addition to the dinner, dance and fundraising activities there was a  rifle and bayonet display by the Pontefract Home Guard and a Dame Vera Lynn tribute. It was a really fun evening, raising funds and awareness. Thanks to Geoff and his team for all the hard work in organising it. Fabulous photos here or there's an album on Flickr

     

 

 

On Sunday 6th October, the branch marked the 40th anniversary of the Association with an event at Meadowhall. In addition to the lighting up of the building in MND colours, there was a stand outside the House of Fraser store and an MND branch walk around the mall. We were joined by colleagues from SITraN and our Patron Suzanne.

It was a great opportunity to explain to shoppers and the general public, what happens in MND, how research into a cure is progressing and what the association both nationally and locally is doing to support people

Bare Legs Brian and BEAT MND

Congratulations to Brian Jackson on completing the latest stage in his challenge to cycle 2019 miles in 2019. Brian has taken up cycling again after 55years to raise money and awareness. Previously he wore shorts or a kilt for 12 months, and although they were highly successful fundraisers, this challenge is in a different league...  At the beginning of September Brian travelled down to Bury St Edmunds and then cycled for a whole week to Ely, Alconbury, Trapston, Market Harborough, Northampton and Daventry. He received plenty of publicity including an article in one of the local papers

https://www.thetfordandbrandontimes.co.uk/news/brian-jackson-cycling-challenge-for-mnda-1-6228339

Brian has less than 150 miles to go now and the plan for the  grand finale on December 7th is about to be publicised . Best of Luck Brian

More Congratulations & thanks :

  •  To Jill and John Hill for another excellent Quiz Night in Sheffield. This annual event is really well supported thanks to the brilliant organisation of the evening. There is a different variation of the  quiz every year and it's topped off with a quality pie and pea supper. The total raised increases year on year.

 

  • To everyone involved in the recent Folk Concert. For the second year running supporters were entertained by some excellent musicians at the Denby Dale Pie Hall last month.. An extensive programme provided a memorable evening, and the total raised was a just reward for all the hard work put into this event. We are delighted that Artisan, who played on the night are kindly coming along to our next Sheffield Open Meeting on December 3rd too.

 

  • To one of our committee members Vicky Paeschel. Not only did Vicky complete the 100 mile Prudential bike ride to add to her long list of fundraisers, but she was also welcomed as one of 3 new trustees at the MND Association AGM in July. Vicky was also very successful in raising awareness of MND in the local press and on local radio, talking about her Big Steps Walk event in Graves Park Sheffield. Over 100 people took part at the August Bank Holiday in glorious sunshine.

  • To our brilliant and dedicated Social Media Administrator Chloe Allen. Chloe has been completing a PhD at SITraN in Sheffield and has had one of her papers accepted for the programme of the International MND Symposium in Perth Australia in December. It is a great honour, and Chloe is very excited. Her talk, in Session 8A Disease Models, is entitled " Antioxidant drugs reveal the potential for patient stratification in Motor Neurone Disease." We hope  Chloe will be able to come along to one of our meetings next year, to tell us about her experience and explain about her work.

 

  •  To Chris Lunn, a regular member at our Rotherham meetings. Chris was awarded an MBE in the Queen's Birthday Honours. She received her award for services to fostering. When her husband Pete was diagnosed with MND, they both decided to keep on fostering, and  Chris demonstrated immense strength and energy caring for the babies and Pete. Although she's on her own now she continues her fostering work and knows that Pete would have been very proud of her.
  •  To Simon Cassell for completing the Liverpool Night Rider bike ride. Simon comes back to Rotherham on a regular basis to support Gillean, his mum who is living with MND. Simon, a keen cyclist  decided to sign up for the Night Rider event with his work colleagues, to raise money for the MND Association. According to Gillean it was not an easy ride, but a great achievement.

 

Thanks to everyone who came along to our Walk to D'Feet at Doncaster. A great way to raise awareness and a really fun event again.

More photos on Flickr

Summer Meeting at the Botanical Gardens

“South Yorkshire Branch spent a wonderful evening at the Botanical Gardens in Sheffield in July. The weather was superb as was the guided tour.  Dame Pamela Shaw gave a talk which included a quick resume of the latest research news from SITRaN - fascinating and encouraging news from our research friends." - Mel White, Branch Chair    More photos on Flickr

Read our latest branch newsletter here

Thanks again to Hallowes Golf Club for their continued support. This is a fantastic fundraiser for us and the weather was great this year. Please take a look at the photo album on Flickr

Congratulations and thanks to all our runners who took part in the Sheffield Half Marathon earlier in the year. We'd love you to join us for the Clowne Half in November. Details below. There's an album of runners' photos on Flickr

Take note of some important dates and fundraisers coming up and see  events for more details.

Saturday 23rd November  Loxley Silver Band Concert. Sheffield.
Sunday 24th November  Clowne Half Marathon and Fun Run.
Monday 2nd December 2.00pm Rotherham Christmas Meeting
Tuesday 3rd December 2.00pm Sheffield Christmas Meeting
This is the last Open Meeting of 2019. In addition to the usual refreshments and quiz we are delighted to welcome folk group Artisan who will perform a seasonal session.

In need of some peace and calm in a welcoming space ? The Cavendish Care Centre Sheffield hold Relaxation Sessions at their centre, for families affected by MND £5.00 per session.

Clifford House. Whirlow Sheffield:  

Opening times. 10.00am - 4.00pm Tues Weds Thurs. Weds 5pm - 7.00pm
A place to relax and socialise within beautiful, peaceful surroundings. Open to everyone affected by an illness that has no cure. There is a monthly timetable of activities to chose from and advice and information from professionals and volunteers. St Lukes Clifford House

"Research Today: Implications for Tomorrow"

This talk, given at the 2018 branch AGM generated a lot of interest. Dr Brian Dickie from the association outlined some of the association funded research projects and explained how they work closely with the fantastic SITraN facility here in Sheffield. The association's research pages give an overview of what is happening, plus fact sheets and information on how to get involved. The research blog gives up to date scientific news, and you can get this sent directly to your own email address.

The Association is constantly updating its Publications and Resources. The link below will help you decide if you want to know more about the many aspects of living with MND on a day to day basis. There are many different formats to chose from and help is always available if you want something explained in more detail.  All the information you need.

To donate directly to the South Yorkshire branch JustGiving page please follow the link below.
https://www.justgiving.com/MNDA-South-Yorkshire

Cheques made payable to MND Association South Yorkshire can be sent to our Treasurer Paul Hebblethwaite 55 Newfield Lane Sheffield S17 3DD or can be paid in directly to the branch account 02972378 sort code 30-96-09

To join your own JustGiving fundraising page to our branch team members page please use the link below and click  join the team. Full instructions are at the bottom of our events and fundraising page.

https://www.justgiving.com/teams/South-Yorkshire-Branch

 

 

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262