MND Care Centre Sheffield
Many people within the South Yorkshire area living with MND will have been diagnosed at the Hallamshire hospital and will most likely attend clinic at the Sheffield MND Centre.
The Neurologists here are: Professor Dame Pamela Shaw, Professor Chris McDermott, Dr Esther Hobson 0114 2261049, Dr Channa Hewamadduma 0114 2713708 and Dr Tom Jenkins 0114 2712306
Theresa Walsh is the MND Specialist Nurse at the clinic 01142 222266
There is a Neurology Outreach Therapy Service NOTS 01142 713730. This service does not have a speech and language therapist, so if speech or swallowing issues are present at diagnosis it is likely that the NES therapy services will be involved.
The centre has it's own website - Sheffield MND Centre
Other Sheffield Services:
Neuro Enablement service NES: Occupational Therapy, Physiotherapy Psychology and Speech and Language Therapy plus Specialist assistant in assistive technology (see below) 01142 711237
Referral to this service is usually made by the clinic team or health professionals but can be made by family members or someone living with MND. It is a service for people registered with a Sheffield GP.
If you are under a Sheffield GP and you are considering a feeding tube(gastrostomy) you should ask for a referral to the Sheffield Home Enteral Feed Service. The dieticians in this service will help you with your decision, and explain everything about gastronomy. Your neurologist, specialist nurse or speech and language therapist will make the referral for you.
Case Management Service: 01142 716950
Cavendish Care Centre complementary therapies and support (see below): 01142 784600
St Luke's Hospice 0114 236 9911 & Clifford House (see below) 01142 357650
Wheelchair Service 01142 434343
Assistive Technology - Nicola Hayton works with the Barnsley Assistive Technology Team who are a nationally recognised service. They aim to improve the independence of individuals living with disabilities through the provision of electronic assistive technologies. Sheffield Referral Point Unit: LTNC Building, Michael Carlisle Centre, 75 Osborne Rd, Sheffield S11 9BF
Contact: 01142 711237 or LTNC.email@example.com
Clifford House is another facility in Sheffield but it welcomes people from nearby too. It is part of St Lukes hospice and is open to people living with an illness which has no cure. It is on a beautiful site off Ecclesall Road South. People with MND and their carers are very welcome to make use of this lovely house, gardens and all the resources.
There's a range of activities to choose from, advice and information sessions and groups to be part of. More than anything, there will be support from others living with illness, and from professionals and volunteers who can help. Relaxation, wellbeing, practical advice and fun are all on offer at Clifford House.
If people just want to go along for a coffee and a chat that is also an option.
Neuro Community Matrons - 01709 423722
Rotherham Hospice - 01709 308900
Neurology Rehab Outreach Team NROT - 01302 796409
St John's Hospice - 01302 796677
Wheelchair Services - 01302 566701
Aurora Centre see below - 01302 644662
Occupational Therapy & Physiotherapy - 01226 644559
Speech & Language Therapy - 01226 432159
Wheelchair Services - 01142 434343
Barnsley Hospice - 01226 244244
Assistive Technology - 01226 432159
The Sheffield Institute for Translational Neuroscience (SITraN) is a world renowned research facility opposite the Hallamshire Hospital in Sheffield. It brings together scientists and medical specialists from around the globe who are dedicated to finding the causes and treatments for MND, as well as other neurodegenerative conditions such as Parkinson's and Alzheimer’s disease.
The key aim of their research is to identify what leads to the degeneration of neurones at the root of MND. The research teams focus on experimental work in the laboratory, which could then be translated into effective therapies for patients in the clinic. Each December doctors and scientists from SITraN attend the International Symposium on MND organised by the MND Association. Our branch AGM the following February, will often have a guest speaker from SITraN to talk about the event.
For more information on research at SITraN please visit: www.sheffield.ac.uk/sitran
The Sheffield Motor Neurone Disorders Research Advisory Group. SMND RAG
The Sheffield Motor Neurone Disorders Research Advisory Group SMND RAG, was established in 2009 to bring together patients and carers from the local area who wish to help researchers understand patient & carer priorities in research.
The group has face to face meetings at SITraN four times a year, in addition to monthly email updates. Associate members of SMND RAG do not need to attend the face to face meetings.
It aims :
- To enable the patient and carers perspectives to be heard, which might otherwise be overlooked
- To provide knowledge for the researchers from the individual's experience and contribution
- To identify and prioritise research topics that are important to patients
- To improve recruitment to research studies
- To comment on study Patient Information Sheets
- To help write lay summaries for research proposals and Research Ethics Committees
If you are interested in becoming a member of SMND RAG and require further information please contact:
Annette Taylor: 01142 222289 or firstname.lastname@example.org
Complementary therapy and emotional support for people affected by MND.
Provision at the Cavendish Care Centre Sheffield and Aurora Centre Doncaster
Cavendish Care Centre Service.
New: Relaxation sessions at the centre's new building and location £5.00 only
"I hesitated before I visited the Cavendish... but everyone was so warm and friendly, before we knew it we were sitting down with a cup of tea."
The Cavendish Centre is a long established charitable organisation in Sheffield that has been offering free supportive care to people living with cancer, for many years. The South Yorkshire Branch of the MND Association works in partnership with Cavendish Cancer Care. The aim is to offer this same form of supportive care, including complementary therapies, to patients with MND, their main carer and children if appropriate.
At one of our Sheffield Open meetings, a therapist from the Cavendish came along to demonstrate some of the services:
Delphine explained that the centre provided a non- clinical atmosphere for families affected by MND to come and talk in confidence about their worries and fears. She explained that often patients and carers protect each other and so may not be able to talk honestly about their feelings to each other.
The centre encourages self referral and the service is flexible so people may attend at any stage of the disease. Though the sessions are time limited, they can also be extended if necessary.
As well as counselling she explained about therapies such as reflexology, acupuncture, hypnotherapy and relaxation. Any of these can help with things like anxiety, decision making and sleep problems.
Julie was a regular client of the Cavendish and found shiatsu invaluable.
"Different weeks it's about different things" she said "The worse I feel the more I need it". Julie also said she felt it "realigned her body".
The sessions are generally carried out at the centre in Wilkinson Street but if you live within a ten mile radius of the Cavendish, the therapists can often offer a service in your own home. Many people have found them a real benefit in the past, whether they've just had a hand or foot massage or the chance to talk to a professional and relax in a pleasant, calming one to one situation.
Contact Marlene Bryan - email@example.com 07522 852990
What are complementary therapies and can I get help with complementary therapies at other locations?
People have found that complementary therapies have been useful in helping to support them during periods of poor health. Complementary Therapies aim to address symptoms of illness and disease and their effects on the physical and emotional aspects of life, through the complete and balanced treatment of the person as a whole. Some of the complementary therapies involve hands on treatments such as aromatherapy massage and some involve talking, listening and counselling.
For people with motor neurone disease these therapies are sometimes offered at a day hospice but the South Yorkshire branch also helps to fund individual courses of complementary therapy for families affected by MND. Contact Marlene Bryan. Details above.
How can I access Complementary Therapies at the Cavendish?
If you, or the person caring for you, wish to receive support and complementary therapy services from the staff at the Cavendish Care Centre or would like further information, please contact them directly and they will discuss all options fully with you. You do not need to be referred.
The service runs Monday to Friday Tel: 01142 784600
What happens when my treatments finish?
Marlene Bryan Branch Contact would very much welcome your feedback on complementary therapies generally, and is happy to help co ordinate a further session of treatments if required. Contact Marlene Bryan - firstname.lastname@example.org 07522 852990
With services similar to the Cavendish, Aurora wellbeing centres support families affected by MND and offer free access to their wellbeing programmes. These can be accessed at Scot Lane Doncaster and Montague Hospital Mexborough sites. Contact: Lynne 07889 988037 for an appointment or Marlene 07522 852990 marlene1919live.co.uk for more information.