News and Research

Our next branch newsletter comes out in March. To read about local events coming up in 2023 go to our events page.

Want to make a difference?  Read about our Volunteer Vacancies.

We are currently looking for a Publicity Officer, and a website administrator. 

Volunteers play an important role in the MND Association. The South Yorkshire Branch is looking for more volunteers to get involved, to help ensure that people with MND, their carers, and their families receive the support and services they need.

We are always looking to recruit more Association Visitors.

Train and volunteer as an Association Visitor: Do you enjoy listening to and helping people? Are you looking for a volunteering role where you can do just that, and fits in around your family, studies, or other commitments? By becoming an Association Visitor and donating your time, energy, and skills, you can make a real difference in the lives of people affected by MND.

The role is currently by phone, email, video, and text from the comfort of your own home. Expenses will be reimbursed. Basic IT skills and access to a computer are required.

The role of the Association Visitor includes the following tasks:

  • offer emotional support to people living with and affected by MND
  • provide information to people living with MND, their carers, and families
  • help people living with MND make informed choices
  • help people to access appropriate services/support
  • explain how the MND Association can support people living with MND, their carers, and families
  • record information, following the MND Association guidelines and local protocols
  • develop and maintain relationships with our local Branch or Group
  • attend support and supervision meetings, as well as development events.

The role offers flexible hours, but we would like Association Visitors to give 2 to 3 hours of their time each week. For this role, you need to be able to work as part of a team, liaise with health and social care professionals and have the ability to develop and maintain supportive relationships.

You will receive a comprehensive induction, which is currently via the video platform Zoom online.

Although a committee runs the branch, you do not need to join the committee in order to volunteer. There are many tasks relating to fundraising, publicity, social media and events with which you could help. Your time commitment can be as much, or as little, as you can spare.

If you can help in any way, please do contact us. The more volunteers we have, the more support we can provide for people with MND, their carers, and their families.

Whatever your skills, background, and age, we can find a role for you.

Research Updates

Research is of course moving on all the time. Professor Dame Pam Shaw, Director of Sheffield Institute for Translational Neuroscience SITraN recently recorded a podcast on BBC radio 4. The podcast is called The Life Scientific and her episode is titled Pam Shaw on the research battle against Motor Neurone Disease. It's available to listen to on BBC Sounds for 12 months.

Professor Shaw kindly agreed to make a recording of the talk she gave at one of the branch Open meetings a few years ago.. Click below to hear what she had to say about research at that time.

To read more research news, including updates from the 33rd International Symposium  December 6th -9th.  sign up for the Association research blog.

"Research Today: Implications for Tomorrow"

This talk, given at the 2018 branch AGM generated a lot of interest. Dr Brian Dickie from the association outlined some of the association-funded research projects and explained how they work closely with SITraN  here in Sheffield. The association's research pages give an overview of what is happening, plus fact sheets and information on how to get involved. The research blog gives up-to-date scientific news, and you can get this sent directly to your own email address.

 

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262