This section of the website is designed for people directly affected by MND to share useful information.
This may be:
- Tips and hints about the practical aspects of living with disease.
- Experience about holidays or short breaks.
- Information about equipment or technology.
- Involvement with research or other projects
Please contact us; firstname.lastname@example.org and pass on anything you would like us to publish. You don't have to write it, if you prefer to just pass on the details we'll do the rest. We may use all or some of the information in the newsletter, here, or on social media.
For information on accessible places take a look at: Euan's Guide
Euan's Guide features disabled access reviews from disabled people and their friends and families "The aim of Euan's Guide is to empower disabled people by providing information that will give confidence and choices for getting out and about." It might be information about hotels, restaurants or attractions. Guide books go out of date so quickly, this website is really useful in sharing recent experiences from people who have "been there, done it" and are happy to pass on what they've learned.
Travelling by Train
Kirstine Booy from Rotherham sent us the following article about a short break in France.
Last summer Mick & I decided we wanted a long weekend in Lille & to travel by train. Having used a company called Railbookers previously we decided to see what they could do for us. We need to get from Rotherham to Lille complete with Mick in a wheelchair. They & the rail companies made the trip totally stress free for us. We got on at Rotherham & went to Doncaster where we were met & helped to transfer platforms. At Kings Cross we were helped across to St Pancras to catch the Eurostar, where they have a dedicated disabled check in desk & staff to help. Because Mick was in a wheelchair we were automatically upgraded to Business Class which also meant we were fed! At Lille again we were met at the station. The guy asked where our hotel was & realising that it was just across the road took Mick across & into reception. Our return journey was just as easy & at Kings Cross we were put on the train as soon as it came in. All in all a very stress free experience.
Just as an aside if you are thinking of going on holiday further afield Eurocamp have a few disabled access caravans at a few of their sites. The one we stayed in was in Serignan near Beziers in the south of France & was very well thought out. However if you don’t wish to travel that far they have a site in Northern France which also has disabled access caravans.