There are now quite a few support Groups in the area, mostly on-line, for those living with MND and their carers. They are held both during the day and in the evening, often monthly. They offer the chance to share thoughts, have a friendly chat and seek support. The Contact listed is happy to answer any questions, so please do get in touch.
- South London Meet Ups - Led by Sally Roberts (Volunteer)
A friendly laid-back space to meet others living and affected by MND. Takes place on Sundays, every 2 months, from 2-4 pm online and in person:
Meeting Dates for 2025:
19 Oct (Royal Trinity Hospice, Clapham, SW4 0RN).
10 Aug, 14 Dec (St. Christopher's Hospice, Sydenham, SE26 6DZ).
Contact: If you have any questions, contact Sally Roberts
- Recently Diagnosed Support Group - Led by Lisa Burnard (ASC)
Open discussion for people recently diagnosed with MND and their loved ones.
Takes place online on the third Friday of the month from 2-3pm.
Meeting Dates for 2025: 18 July, 15 Aug, 19 Sept, 17 Oct, 21 Nov, 19 Dec.
Contact: If you have any questions, contact Lisa Burnard
- Online group for carers (am) - Led by Lisa Burnard (ASC)
A virtual cuppa and friendly chat with other carers of people with MND. Join us on the first Tuesday of each month at 11am.
Meeting Dates for 2025: 5 Aug, 2 Sept, 7 Oct, 4 Nov, 2 Dec.
Contact: If you have any questions, contact Lisa Burnard
- Evening monthly carers Group - Led by Charlotte Standford-Gibbs and Abigail Igbokwe (ASC)
A virtual cuppa and friendly chat with other carers of people living with MND. Takes place on the last Wednesday of the month from 6.30pm.
Meeting Dates for 2025: 30 July, 27 Aug, 24 Sept, 29 Oct, 26 Nov.
Contact: If you have any questions, contact Charlotte Stanford-Gibbs and Abigail Igbokwe
- Facing MND Together
A friendly and supportive online group for people living with and affected by MND. Takes place on the first Wednesday of the month from 11am-Noon. For more information contact Abigail Igbokwe
- Tea, coffee & a catch up peer to peer support group
Tea, coffee & a catch up peer to peer support group. An informal online peer-to-peer support group offering an opportunity to share ideas and meet others living with and affected by MND.
Takes place on the third Tuesday of the month from 11.00am-12.30pm
Meeting Dates for 2025: 15 Jul, 19 Aug, 16 Sep, 21 Oct, 18, Nov, 16 Dec.
Contact: If you have any questions, contact Liz Cooper
- Working with MND Peer Support Group
For people living with MND who continue to work, to come together to share experiences in a relaxed, safe and supportive way. For more information contact Jo Cunnah (Community Support Coordinator).
- PMA-PLS Support Group
For those living with or affected by Progressive Muscular Atrophy (PMA) or Primary Lateral Sclerosis (PLS). This group helps you link up with other people living with or affected by PLS or PMA. It meets on the second Monday of each month from 5pm - 6pm. If you have any questions, contact MND Connect
- MND Veterans Group
Enables MND veterans to support each other, sharing their experiences and common interests. Meets on the fourth Wednesday of the month from 2.30pm - 3.30pm. If you have any questions, contact Grace Kay
- CHC Peer Support Group - Led by Anne Anderson, CHC Peer Support volunteer
To better understand how to obtain Continuing Health Care (CHC) funding or to resolve problems with an existing package. Meets every 6 weeks at 11am. If you have any questions, contact CHC