Research news
News

MND charities respond to TUDCA trial results

27 March 2024
We are disappointed that the European TUDCA-ALS phase 3 clinical trial of TUDCA did not meet its primary aim
Research news
News

MND Association acts on tofersen decision

21 March 2024
Tofersen is a proven, effective treatment. Clinical trials have shown it slows progression of MND in people who have the SOD1 gene alteration.
Sam Perkins lab visit
News

New research partnership to support the search for MND treatments

19 March 2024
Researchers at the University of Nottingham are joining forces with Stand Against MND, the charity co-founded by Sam Perkins who has MND, and the MND Association, to carry out research
Research news
News

Statement in response to NICE decision regarding tofersen

13 March 2024
Last week we heard the disappointing news that NICE has confirmed its decision to appraise the drug tofersen through the Single Technology Appraisal (STA) route
News

Spring budget 2024 response

6 March 2024
The Association responds to the 2024 spring budget announcement.
MND Connect
News

Changes to MND Connect

4 March 2024
Changes to MND Connect
News

‘Heartfelt thank you’ to rugby fans for £8.2million fundraising effort

29 February 2024
‘Heartfelt thank you’ to rugby fans for £8.2million fundraising effort
Research news
News

MND charities update on MIROCALS data

27 February 2024
We have today written a joint letter with MND Scotland and My Name’5 Doddie Foundation to regulators to alert them to the imminent publication of data from the MIROCALS trial
Symp Basel
News

Announcing the MND Association’s 35th International Symposium and MND EnCouRage 2024 for early career researchers

27 February 2024
Following the success of the 34th International Symposium on ALS/MND in Basel, Switzerland, planning is well underway for the 35th Symposium, this year to be held in Montreal from 6-8 December.