Professional talking to a couple

This information is for health and social care professionals.

This page includes best practice guidelines and pathways from a range of services to help you improve your services to people with and affected by MND.

If you would like to submit your own guidelines to be included, please contact [email protected]

Allied Health Professional's competency framework

Allied Health Professionals’ competency framework for progressive neurological conditions
Covering the responsibilities of allied health professionals working with patients with progressive neurological conditions. With sections that focus specifically on Parkinson’s disease, multiple sclerosis and motor neurone disease.

MND general pathways and guidance


NICE guidance 42 - Motor neurone disease: assessment and management
Evidence-based guidance from the National Institute for Health and Care Excellence on best practice in MND care.

NICE Quality Standard QS126 - Motor neurone disease
The NICE Quality Standard on MND draws attention to specific, measurable aspects of good care for MND, allowing health and social care professionals to assess whether they have the structure and processes in place to meet them.

Care pathway for people living with MND in Dorset
Date: February 2018
Author: Multi Disciplinary Pan Dorset MND Group

Care pathway for patients with motor neurone disease
Date: 2022
Author: Middlesbrough MND Care Centre

The Greater Manchester MND Care Model Pathway
Date: 2020
Author: Greater Manchester MND Care Centre

MND Management Pathway
Date: 2019
Author: Ipswich and East Suffolk MND Clinic

Management Of MND
Date: May 2019
Author: Norfolk MND Care and Research Network

Optimal care pathway for MND
Date: June 2023
Author: National Neurosciences Advisory Group

Communication

AAC Pathway for MND
Date: 2021
Author: MND Association

Nutrition

Gastrostomy Management In MND
Date: May 2019
Author: Norfolk MND Care and Research Network

Nutrition care pathway for people living with MND in Dorset
Date: April 2018
Author: Dorset MND MDT Working Group

PEG Pathway and Referral form
Date: March 2022
Author: Middlesbrough Care Centre

Respiratory management

Respiratory Pathway for people with MND
Date: April 2019
Author: MND Association

Respiratory Management Of Patients With MND
Date: May 2019
Author: Norfolk MND Care and Research Network

Non-invasive Ventilation Pathway
Date: June 2020
Author: Pan Dorset MND Steering Group

How to use cough assists and home mechanical ventilation videos
Date: May 2023
Author: University Hospitals Bristol and Weston NHS Foundation Trust

Wheelchairs

Wheelchair Pathway for MND
Date: 2021
Author: MND Association

End of life care

End Of Life Care Guidelines
Date: 2018
Author: Multi Disciplinary Pan Dorset MND Group

Page last updated: July 2021
Next review: July 2023