This information is for health and social care professionals.
This page includes best practice guidelines and pathways from a range of services to help you improve your services to people with and affected by MND.
Please note that we regularly revise this page, but our team does not review and correct the individual pathways and guidelines.
If you would like to submit your own guidelines to be included, please contact [email protected]
Allied Health Professional's competency framework
Allied Health Professionals’ competency framework for progressive neurological conditions
Covering the responsibilities of allied health professionals working with patients with progressive neurological conditions. With sections that focus specifically on Parkinson’s disease, multiple sclerosis and motor neurone disease.
MND general pathways and guidance
NICE guidance 42 - Motor neurone disease: assessment and management
Evidence-based guidance from the National Institute for Health and Care Excellence on best practice in MND care.
NICE Quality Standard QS126 - Motor neurone disease
The NICE Quality Standard on MND draws attention to specific, measurable aspects of good care for MND, allowing health and social care professionals to assess whether they have the structure and processes in place to meet them.
Care pathway for people living with MND in Dorset
Date: February 2018
Author: Multi Disciplinary Pan Dorset MND Group
Care pathway for patients with motor neurone disease
Date: 2022
Author: Middlesbrough MND Care Centre
The Greater Manchester MND Care Model Pathway
Date: 2020
Author: Greater Manchester MND Care Centre
MND Management Pathway
Date: 2019
Author: Ipswich and East Suffolk MND Clinic
Management Of MND
Date: May 2019
Author: Norfolk MND Care and Research Network
Optimal care pathway for MND
Date: June 2023
Author: National Neurosciences Advisory Group
Communication
AAC Pathway for MND
Date: 2021
Author: MND Association
Nutrition
Gastrostomy Management In MND
Date: May 2019
Author: Norfolk MND Care and Research Network
Nutrition care pathway for people living with MND in Dorset
Date: April 2018
Author: Dorset MND MDT Working Group
PEG Pathway and Referral form
Date: March 2022
Author: Middlesbrough Care Centre
Risk traffic light system for PEG
Date: March 2021
Author: Middlesbrough Care Centre
Respiratory management
Respiratory Pathway for people with MND
Date: April 2019
Author: MND Association
Respiratory Management Of Patients With MND
Date: May 2019
Author: Norfolk MND Care and Research Network
Non-invasive Ventilation Pathway
Date: June 2020
Author: Pan Dorset MND Steering Group
How to use cough assists and home mechanical ventilation videos
Date: May 2023
Author: University Hospitals Bristol and Weston NHS Foundation Trust
Wheelchairs
Wheelchair Pathway for MND
Date: 2021
Author: MND Association
End of life care
End Of Life Care Guidelines
Date: 2018
Author: Multi Disciplinary Pan Dorset MND Group
Page last updated: July 2021
Next review: July 2023
