Best practice guidelines and pathways
This page includes best practice guidelines and pathways from a range of services to help you improve your services to people with and affected by MND.
If you would like to submit your own guidelines to be included, please contact education@mndassociation.org
NICE guidance 42 - Motor neurone disease: assessment and management
Evidence-based guidance from the National Institute for Health and Care Excellence on best practice in MND care.
NICE Quality Standard QS126 - Motor neurone disease
The NICE Quality Standard on MND draws attention to specific, measurable aspects of good care for MND, allowing health and social care professionals to assess whether they have the structure and processes in place to meet them.
AAC for MND: best practice guidelines for professionals
Guidelines for health and social care professionals on augmentative and alternative communication.
Care pathways and clinical guidance
Generic pathways and guidance
Care pathway for people living with MND in Dorset
Date: February 2018
Author: Multi Disciplinary Pan Dorset MND Group
Care pathway for patients with motor neurone disease
Date: 2018
Author: Middlesbrough MND Care Centre
End Of Life Care Guidelines
Date: 2018
Author: Multi Disciplinary Pan Dorset MND Group
MND Management Pathway
Date: 2019
Author: Ipswich and East Suffolk MND Clinic
Management Of MND
Date: May 2019
Author: Norfolk MND Care and Research Network
NICE guideline 42: MND assessment and management
Date: 2016
Author: NICE (National Institute for Health and Care Excellence)
Respiratory Care Pathway, NIV - Dorset June 2018
Date: June 2018
Author: Multi Disciplinary Pan Dorset MND Group
Nutrition
Gastrostomy Management In MND
Date: May 2019
Author: Norfolk MND Care and Research Network
Leeds Motor Neurone Disease PEG Pathway
Date: March 2015
Author: Leeds Centre for Neurosciences
Nutrition care pathway for people living with MND in Dorset
Date: April 2018
Author: Dorset MND MDT Working Group
Saliva management
Guidelines for provision of portable suction units for patients with MND who are cared for within community settings
Date: 2015
Published by: Middlesbrough MND Care Centre
Respiratory management
MND Respiratory Pathway
Date: April 2015
Author: MND Association
Respiratory Management Of Patients With MND
Date: May 2019
Author: Norfolk MND Care and Research Network
Withdrawal of Assisted Ventilation at the Request of a Patient with Motor Neurone Disease
Date: November 2015
Published by: Association for Palliative Medicine of Great Britain and Northern Ireland
Communication
AAC Pathway for MND: full guidance
Date: July 2015
Author: MND Association
Speech and Language Therapy (SALT) assessment pathway
Date: 2015
Author: Middlesbrough MND Care Centre