We regularly hold two types of meetings:

Support Meetings

These are open meetings that give you the chance to meet other people with MND, their carers and family, as well as others whose lives have been impacted by the disease. This is an opportunity to share experiences and knowledge in a relaxed atmosphere, with others who understand. Our guest speakers cover topics relevant to people affected by MND. MND can be an isolating disease – these meetings can help to combat that feeling by providing a warm and welcoming atmosphere. Refreshments are provided too.

Our support meetings are held on Sunday afternoons, 3 - 5pm at:

St Paul’s Centre
St Paul’s Road

Next Meeting: 20 September 2020 - We will be holding this meeting via remote video. Further details to follow.

Upcoming meetings in 2020:

6 December


Carers' Group Meetings

These are geared towards people who know, or are living with, someone with MND, be it the primary carer, or someone who is an occasional carer, including children aged over 16. The idea is that anyone who is, or might take the role of carer, even for a short period, can attend and talk to others in the same position. The challenges of caring for someone with MND are often underestimated. These meetings offer the opportunity to talk about those challenges in a supportive, welcoming and non-judgemental atmosphere.

Some feedback from carers who have attended group meetings:

• 'I feel stronger having heard everyone else’s experiences and sharing my own.'

• 'It's good to know you can sit with people who understand, chat over tea and biscuits and have a break for an hour or two. I left feeling that I had spent an evening with friends. That's a good feeling.'

• 'I thought it was brilliant, to be able to discuss and share everyone’s experience, good or bad and be able to learn and explore how to improve the level of support provided to the loved ones.'

• 'It's very welcoming and distinctly non-threatening.'

Our Carers’ Group meetings are held on the third Tuesday of every month, excluding August and December, between 7.15 – 8.45pm at:

The Meeting Room (Side Entrance)
St Barnabus Church
Pitshanger Lane
W5 1QG

Next meeting: TO BE DETERMINED - We will be holding this meeting virtually via a remote video link. Further details to follow.

Upcoming meetings in 2020:

20 October
17 November
22 December



For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262