I was diagnosed with MND in June 2017, having started to experience the first symptoms in May 2015.
Since then, it has been a steep learning curve, focusing on what motor neurone disease is and how it will affect me. My early academic activity in genetics has helped me with this.
Professionally, I am an accountant and fundraiser and I have my own small business where I work with the not-for-profit sector including charitable organisations and some parts of the public sector, both in the UK and internationally.
Initially, having made contact with my neurology consultant and the various support professionals available including my wonderful occupational therapist, I went along to the South London Branch of the Association to find out what support might be offered there. I received a very warm welcome, and after joining the committee I have been involved in helping with ICT matters and supporting various fundraising activities. I am also a Campaigns Contact.
I have also become involved in the MND Association's digital forum and I continue to contribute to the discussions there, together with those available on other digital MND chat rooms.
I prefer to say that I am living through motor neurone disease, with my wife, my daughter and various close friends.
I believe my skills will be useful to the Association at a national level and I am pleased to have been elected to the role of trustee. I look forward to contributing to the MND Association's mission in any way that I can.