Richard Coleman – Chair
My wife was diagnosed as having MND in July 2004 – she was a nurse and had some knowledge of the disease – I had never heard of it and, sadly, had to learn very quickly. She passed away in May 2006, and during those two years I progressively became her full-time carer.
I therefore have first hand experience of the nature and typical progression of the disease, and of how it can affect a patient both physically and mentally, and I have an unfortunately good understanding of the demands of being a carer, including the frequent frustrations that role brings.
I also saw, first hand, the impact of the disease on family and friends, as well as experiencing the tremendous support that the Association provides to people living with the disease.
During the time that my wife had MND we both joined the Committee of the Chiltern Branch of the Association. I became Chair in April 2007, and am now Vice Chair.
I initially became a Trustee in 2011, and now as well as being Chair, I am also a member of the Governance and Finance & Audit Committees. Since joining the Board I have been involved in a number of working groups and projects, working alongside members of Association staff, fellow Trustees and other volunteers, and I believe that this is enabling me to make a contribution to helping the Association achieve its vision of a world free from MND.