Take part in research

Our aim is to provide people with MND the opportunity to take part in research studies. Below we list research projects that currently recruit participants for their study. These do not always involve testing a new treatment (clinical trials). Most are focused on understanding the causes of MND, and improving diagnosis, care and quality of life of people affected by the disease. To make sure that you get notified about new research opportunities, you may wish to join our MND Research list.

Opportunities to participate in research are split by their area of focus:

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Treatment trials
Testing potential treatments for MND in clinical trials

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Biomarker studies
Collecting biological samples to find unique fingerprints of MND

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Symptom management
Identifying ways to manage symptoms associated with MND

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Improving wellbeing
Improving quality of life of people affected by MND

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Other
National registers, improving clinical practice etc.

Treatment trials

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MIROCALS clinical trial
Testing the effects of low-dose interleukin-2 on disease progression and survival.
Recruiting: People with ALS
Location: Brighton, Glasgow, London, Manchester, Sheffield

Symptom management

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Remote breathing management
Validation of a new, hand-held device in the role of the management of breathing failure with MND.
Recruiting: People with MND
Location: Cambridge

Biomarker studies

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ALS biomarker study
Collecting biological samples to search for biomarkers.
Recruiting: People with ALS | Healthy controls | Neurological controls
Location
: London

AMBRoSIA: A Multicentre Biomarker Resource Strategy in ALS
Searching for unique fingerprints of MND for faster diagnosis.
Recruiting: People with ALS | First-degree relatives | Healthy controls
Location: London

C9orf72 cohort study
Collecting biological samples to search for causes of C9orf72-related MND.
Recruiting: People with ALS | Family members | Healthy controls 
Location
: Oxford

Improving wellbeing

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NeuroLTC: Care needs in neurological conditions
Identifying and understanding care needs in long-term neurological conditions.
Recruiting: People with MND | Carers
Location: UK-wide

TONiC: quality of life in neurological conditions
Examining the factors influencing quality of life in neurological conditions.
Recruiting: People with MND
Location: UK-wide

Other studies

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MND Register of England, Wales and Northern Ireland
Collecting information about every person living with MND.
Recruiting: People with MND
Location: Anywhere in England, Wales and Northern Ireland

Diagnosis experience in MND
Exploring experiences of being told the diagnosis of MND.
Recruiting: People with MND | Carers
Location: UK-wide

Stigma and MND
Does perceived stigma influence psychological distress in people with MND?
Recruiting: People with MND
Location: Worldwide

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262