Exploration of lived experiences of death and dying conversations: A phenomenological study

Exploring people's perceptions of conversations about death and dying

Most people do not discuss death /dying until there is a medical reason to do so, and most conversations are held within a clinical setting. My research will explore people’s perceptions of death/dying conversations to consider what could be done to help facilitate open discussions about death/dying outside of clinical settings. As MND is, unfortunately, a terminal disease researchers would like to hear from people living with MND and their valuable insight.

What does taking part involve?

Taking part involves a one-to-one interview via Zoom. The interview will explore individuals' conversations about death and dying. Breaks will be included if required and participants can stop the interview at anytime.

Participants will be emailed a £20 Amazon voucher as a token of appreciation for their time.

Study location

UK wide

Who can take part?

People Living with MND:
• Aged 18+
• Able to speak/read English or work with a carer to do so

People part of organisations that support individuals who have a life-limiting illness:
• Aged 18+
• Able to speak/read English

Participants must also be able to provide informed consent and have access to the internet, communicate by email and use Zoom.

How can I take part?

Anyone who is interested in taking part or who would like more information can contact the projects researcher, Alexandra Pinto, hcapp@leeds.ac.uk.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262