Publications and Resources

Motor neurone disease - a guide for GPs and primary care teams 
Endorsed by the Royal College of General Practitioners (RCGP), this publication aims to help health and social care professionals provide care and support to people with MND. It includes information about symptoms, aetiology and treatment. (Code: PX016)

Occupational therapy for motor neurone disease
This comprehensive guide provides information about MND and how to support people to adapt to their changing symptoms and achieve the best possible quality of life. Endorsed by the Royal College of Occupational Therapists. (Code: PX020)

MND in acute and emergency care
A succinct guide for emergency care professionals, including ambulance staff, on actions to take and things to consider when treating a person with MND. (Code: PX017)

Cognitive change, frontotemporal dementia and MND 
This booklet contains information on cognitive and behavioural change and dementia, and practical tips on management. (Code: PX018)

Caring for a person with motor neurone disease: a guide for care workers
This booklet is designed to give paid care workers information and practical tips on the care of someone with MND. (Code: PX011)

Supporting children and young people close to someone with MND
This booklet is for any professional working with children or young people who have a parent, guardian, grandparent or close relative with MND. This includes teachers, school nurses, youth workers and social workers. (Code: PX031)

A professional's guide to end of life care in MND 
A booklet to help health and social care professionals to support people affected by MND with end of life concerns. (Code: PX012)

Multidisciplinary team working for MND
A guide to help health and social care professionals establish, develop and maintain an effective multidisciplinary team. (Code: PX010)

MND: A Guide For Social Care Services
A booklet to help social care professionals, including social workers, to offer the best possible support to people with MND, their carers and family. (Code: PX022)

Head supports for people with MND - information sheet P1 
Guidance on head and neck supports for people with MND. (Code: P1)

Wheelchairs for people with MND - information sheet P2 
Information about access to wheelchair services and the types of wheelchairs recommended for people with MND. (Code: P2)

Managing saliva problems in MND - information sheet P3 
Strategies and treatment options for managing saliva problems experienced by people with MND. (Code: P3)

MND Just in Case kit - information sheet P4A 
This sheet explains how health professionals can use and order the MND Just in Case Kit. (Code: P4A)

Providing medical evidence for benefit applications made by people with MND - information sheet P5 
Guidance for health or social care professionals who may be asked to provide medical evidence to support a claim for disability/employment benefits made by someone with MND. (Code: P5)

Evaluation and management of respiratory symptoms in MND - information sheet P6
Guidance for health professionals on respiratory symptoms in relation to MND. (Code: P6)

CHC For MND - information sheet P7
Information to support professionals assessing people for CHC funding.

Dysphagia in MND - information sheet P8
This information covers evaluation and management of swallowing problems. (Code: P8)

Oral suction - information sheet P9
Information about oral suction for secretion management. (Code: P9)

Voice banking - information sheet P10
Information about voice banking, message banking and voice repair.

Pain in MND - information sheet P11
Information on pain management. (Code: P11)

MND information for dental teams - information sheet P12
Gives an overview of potential issues people with MND face with oral health and access to dental services, and includes suggestions to help dental professionals. 

AAC Pathway for MND
This pathway is intended to be used by professionals assessing the communication needs of people with MND. It aims to help the reader identify the steps involved in the provision of AAC, and to inform commissioners of the infrastructure needed to provide an effective and efficient service.

Wheelchair Pathway for MND
This pathway has been designed to help wheelchair therapists and other professionals to support someone with MND to access a suitable wheelchair in a timely way.

Visit our Best Practice Guidelines and Pathways page to view MND pathways submitted by other organisations.

Understanding MND is an introductory video for health and social care professionals. It features four people with MND, sharing their experiences of the condition.

You can view it here, or order hard copies on DVD or USB from MND Connect on 01604 611870.

We’ve worked with The Royal College of General Practitioners (RCGP) to create a Red Flag tool for MND, which is designed to improve timely referrals to neurology and therefore speed up the time to accurate diagnosis.

You can also download or order the Red Flag tool in tool Welsh.

The MND Just in Case kit is designed to hold medication that may be needed if a person with MND experiences a sudden change in their symptoms, such as breathlessness, coughing or choking. It is ordered by a GP for a named patient.

Further information is available here.

We have a range of posters about the care support offered by the MND Association, available to download in English or Welsh.

See our care posters

We have developed the following education presentations to support professionals delivering training:

1. How The MND Association Can Help

2. What Is MND

3. Symptom Management

4. Speech And Communication

Additional presentations will be added in the future.

Allied Health Professionals’ competency framework for progressive neurological conditions
Covering the responsibilities of allied health professionals working with patients with progressive neurological conditions. With sections that focus specifically on Parkinson’s disease, multiple sclerosis and motor neurone disease.

These leaflets outline our publications and resources by topic. These may be helpful for events, or to help find information on a particular topic.

Cognition And Psychological Support
Multidisciplinary Team Working
Muscle Weakness
Equipment And Adaptations
Palliative And End Of Life Care
Recognition And Diagnosis
Respiratory Symptoms
Speech And Communication
Swallowing And Nutrition